I am a new C-Shooter since the end Jan of this year.

Yes, SS can be annoying.

They were calling and calling and calling...leaving messages...

I said..."Look. Don't call me. I take your drug, but don't call me. If I have any problems I will call my Dr. Don't call me."

Must of been the tone in my voice.

Gee, they have never called again.

Do you think it was something I said?

They were that way in the beginning for me too, until about 3 months in I told them not to call me so much.

if i called them with a problem they would call back maybe once to check on me. they don't bother me at all.

when it's time for me to reorder for the month they call me, if i don't call them. i think it's nice of them to keep track and get it ordered.

i agree. i think if you just say stop the calls they should do that.
i hope they will stop bothering you.

Yeah. Annoying. I got copaxone for 2 months in 2003 and decided it wasn't for me. I still get mail from SS. But that first 6 months, it was almost harrassment.

NMSS is pretty bad too. I get a request for my annual donation every 6 weeks or so. They basically waste my annual donation on all the mail they send me. It's like they think I forget when I last donated.

Tom

I was on copaxone for several years. Never a problem. Just the expected "normal" redness and stinging at the injection site.

I had always given myself the shot with a syringe and needle. Didn't care for the injection gadget. I'm a nurse and have given thousands of injections to others, so I already knew about sterile technique. So for several years I did the C without any problems.

Then one day I did my injection and within 10 minutes the injection site was the size of a softball, red and hard, raised between an 1/8 and a 1/4 of an inch high, and hot. Not to mention, extremely painful. I called my neuro after several hours of no change. He worked me in that afternoon, said I had developed an allergy to the med, and had me DC the med.

Two days later, when SS was notified by my doc about DC'ing the med, they called me. I was told by SS to use a warm compress(yeah, that'll keep it from swelling to softball size) before injecting. They questioned my technique. Then told me that I should have contacted them first!!! Contacted them.........a drug company first? Huh! So SS was now playing doctor? What a joke! I could not believe what I was hearing.

I'm sorry to go off like this, but I really feel the need to share the bad experience I had with SS.

To anyone who reads this, please always contact your neuro first if you ever have an unusual or severe reaction. Please.

I never quite understood the whole "warm compress" thing...especially if the injection site is swelling. I was always taught by my dad that you put something cold on something that's swelling like a bee sting. Mostly because heat can pull hives up. Learned that the hard way when I took some antibiotics once and then went to take a hot bath. I had mononucleosis (PA at my dr's office misdiagnosed it as a sinus infection and gave me some sort of penicillin)

So, the mononucleosis that my aunt told me I had (told me to get it confirmed by the doctor) was pretty much confirmed by the reaction. (penicillins + mononucleosis = hives)

Heat draws out hives. (and I had to wait 2hrs for my mom to get home with the Benadryl...she'd stopped to eat dinner on the way home...apparently she didnt quite understand the urgency)

I dont like Shared Solutions much...they send me too much junk mail, and they're pushy and rude when they call me. I like the fact that they're paying most of my co-pay for my C ($50...I pay $10) but other than that, I dont like them.

Oh, and according to my pharmacy, Shared Solutions is 2 months behind on paying my co-pay...I keep getting bills in the mail from the pharmacy.

Erin, I'm sitting here lmao! You're dead-on right about the warm compress. In fact, I laughed out loud at the suggestion when I was on the phone with SS. The first thing I did when it happend was ice it down, then took benadryl. When that didn't show any sign of improvement I called my doc.

Believe it or not..........they are still sending me junk mail!!! It goes directly from my mailbox into the trash.