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Old 05-30-2009, 12:49 AM #1
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Hey Thanks 4 reading and your comments.Will write to keep you up to date on this. Your Canary Jim
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Old 05-30-2009, 08:09 PM #2
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Welcome. Keep us posted when you can.
The stumble inn is a great place for a laugh.
Jump in, chat, get it all off your chest, moan and whine to your heart's content.
It's great here!!
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Old 05-31-2009, 12:00 AM #3
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Hi Jim and Welcome to NT!! I'm so sorry you've been having so many difficulties lately. This disease sure takes it's toll on us whether or not we're involved in a clinical trial. Hope your experiences get better soon!! If you're up to it, please keep us posted and jump right in any other time.

Hugs.......
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Old 06-20-2009, 11:11 PM #4
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I will update everyone on this study as my next infussion is in august.They said that I am now receiving the meds for sure.Hmm I may or may not been on it.Now Im walking very little the pain has increased along my sadness.I guess Im doing a good thing,just doesnt feel that way.....
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Old 06-20-2009, 11:21 PM #5
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Hi Jim! I'm glad to hear from you, I was wondering how you were doing..No more infusions till August? That's quite a wait. Have they done any more MRI's or checked on your progress at all?
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Old 06-21-2009, 12:41 PM #6
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Awww,sorry, Jim. I hope your August infusion proves to be the magic bullet and things improve for you.

Thanks for checking in..
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Old 06-23-2009, 03:05 PM #7
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Thank you for sharing, I will be keeping a close eye on your experience and this site.

Best of luck!!
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