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Old 04-05-2009, 04:12 PM #1
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My MS is driven by headaches... only they're not 'true' headaches.

My first symptoms of MS striking were likely when I had type 1 Trigeminal Neuralgia attacks several years ago.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
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8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 04-05-2009, 04:33 PM #2
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What Cindy said..Dump the neuro and find a real one..In fact, show him some of the comments you've gotten on this thread. He'll either decide to learn more about the disease he thinks he's talking about, or be a dead head forever (not the good kind )...
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Old 04-05-2009, 05:22 PM #3
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At the 5th MS specialist neuro I was very happy. But then he moved. Number 6 at beginning of May, wish me luck. On my MRIs, even I could see the lesions, so no question about it.
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Old 04-06-2009, 11:08 PM #4
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Quote:
Originally Posted by kicker View Post
At the 5th MS specialist neuro I was very happy. But then he moved. Number 6 at beginning of May, wish me luck. On my MRIs, even I could see the lesions, so no question about it.
Always wishing you the best of luck, my dear Kicker!
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Old 04-06-2009, 11:26 PM #5
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welcome to NT.

i have to agree. this "dr" sounds like a lunatic. i hate when drs write off your sx's. and, if a degreed MD radiologist says you have lesions i'd believe him.
you really need another opinion. and don't worry about how long you have to wait to see a real dr.
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