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Old 04-11-2009, 11:34 PM #1
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i was given a choice but my dr also gave me his suggestions.
i was given an information kit/video on each drug. i read everything and watched the video and in the end agreed with my dr.

i didn't want the side effects of the interferons and didn't want to chance any mood disorders so i went with copaxone. i decided to trade that for daily shots. while i don't like it i'm in a routine and it's not so bad.

i don't know if folks without insurance can get the meds but i would think that medical care is greatly restricted.

btw, welcome to NT.
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Old 04-12-2009, 06:53 AM #2
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I used a scientific approach to my selection, I based it on convenience. I travelled a lot and didn't want to haul around extra cargo, so I went with Avonex. I got over the side effects quickly and it seems to be working so I have stuck with it for several years.

I believe some people can get meds at a reduced cost from the pharma and variouse other organizations. But I imagine there is a strict income criteria that not everyone will qualify for assistance.
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Old 04-12-2009, 07:33 AM #3
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I had Insurance, all the choices and for convenience chose Rebif, the only one that came pre-mixed and in needles at that time. I had no problems but it did nothing for me (suspected PPMS) but as I expected that.
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Old 04-12-2009, 07:43 AM #4
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I used Copaxone first.....didn't do anything for me. Then went to Betaseron after that. Had terrible side effects and site reactions....plus had even more lesions on follow up MRI. Neuro is pushing Tysabri hard but I have told him "no". Taking LDN now and have stablized more on it than with anything else. It's definitely not a cure but it does give me much sx relief most of the time.
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Old 04-12-2009, 08:23 AM #5
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I was diagnosed last November and was in shock when the drugs were mentioned to me. My neurologist wasn't very friendly, at the time, and just told me they were once a week, every day or 3 times a week and gave me some info to read and videos.

I have now been taking Copaxone for almost 6 months and I can't say it gets any easier. I have skipped some days, just unable to face giving myself yet another needle. Sometimes I end up bruising really badly because my hand is shaking so much, or the stress headaches are so strong before the injection that I can barely see straight.

I don't know if Copaxone has helped me. I’m having a lot of cognitive issues, balance problems and daily headaches. I just don't really know if it's doing me any good but I'm too scared not to take it. I guess I’ll find out soon if it’s working because I have a six month MRI coming up at the end of the month.
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