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Old 05-16-2009, 05:28 PM #41
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I've been feeling more tired the past few days. I checked my calendar and noticed it will be five weeks when I get my infusion on Monday. I think I really need it, lol.

In the morning I'll be getting an MRI of my C-spine and brain too so hopefully everything is looking extra good in there.
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Old 05-16-2009, 11:54 PM #42
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Hey Wiz, sorry you have been dragging. Hope the MRI results are good!
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Old 05-17-2009, 12:00 AM #43
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I don't have an MRI scheduled, but Wiz I know what you mean about draggin' lately..I've been miserable the last few days, and have my next infusion on Monday, too..Hope it helps us both!
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Old 05-17-2009, 03:27 PM #44
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Thanks Natalie and Polar,

I feel better today, so maybe I just overdid it last week? Oh well, I'll be glad when tomorrow is over. I checked my dates for the rest of this year and the rest of the infusions are four weeks apart.
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Old 05-18-2009, 11:17 PM #45
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Had my 2nd Ty infusion today, and it went just fine..Sitting around for 2 hours made me sleepy, but that's about it. Took the "scenic route" home (got lost), but got to see some really cool houses around Como Park that I probably would've never seen otherwise, so it's all good ..How'd it go for you, Wiz?
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Old 05-19-2009, 08:27 AM #46
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Yay Polar, I'm glad it went well.

My MRI's were excellent, C spine included.

The infusion went well and we got home earlier than expected. I was a bit tired but it was a long day and trip. I'm ready to face the next four weeks now.
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Old 05-19-2009, 05:55 PM #47
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Glad to hear it all went well, Wiz!
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Old 05-21-2009, 03:43 AM #48
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Hey everybody!

I've been a lil MIA lately!

I'm working too hard to get everything that needs to be done at home DONE before it gets too hot to work in the yard, working too much at my job, not sleeping enough, and getting ready to start another job in addition to everything else. I'm actually looking forward to this, since it's a job I love and I can't wait to restart it!

I had to do a bunch of recerts too so I have been averaging about 4 hours of sleep a day. I'm beat, my sleep schedule is way off and life is still good!

I go for # 26 today!! Yay!!
I plan on taking a few minutes to celebrate!

I couldn't sleep so I got up to putter and I was thinking about how it's been TWO YEARS since I started Tysabri. I've only missed one infusion and I am just so pleased with the NON progression and the NO DISABILITY that has come from this drug. What a freakin' miracle this stuff is for so many of us!

I know I wouldn't be able to do what I am doing now if it wasn't for Tysabri. All the carp before is almost just a bad memory now, the cycling through the relapses, the vision problems, the balance garbage, the cognitive malarkey, and the utter despair in knowing that I was losing me!! Having all that blackness turn to joy is amazing!

Time IS brain, my friends. I'm so glad I still have mine and that you all still have yours and that we can come here and rejoice in our triumphs and find support when it's not going so well!

Today will be a GOOD day!

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diagnosed 09/03/2004
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Old 05-21-2009, 08:20 PM #49
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...and it WAS a good day!

The sun was shining, it was actually hot out, the infusion went as usual.

There was NO chocolate cake...so I will have to make one for myself!

Hope everyone is doing well!!


(p.s...I found my previous post on an investors board today...)
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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Old 05-22-2009, 12:11 AM #50
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Hey RW! My having "a brain" is questionable under the best of circumstances ..But no matter, I agree it's great to be able to come here for understanding and support! I'm so glad you're having a great time, feeling well, and still going strong on Ty..It gives me hope!
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