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Old 04-24-2009, 02:25 PM #18
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Riverwild Riverwild is offline
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Dorkbrain View Post
I am new to this forum. I am here because I need some advice from other patients. I was diagnosed with MS in October of 1993. I still work full-time, and most people don't even know I have it, but I am having some problems that are really starting to affect my quality of life. My two major problems are double vision, and a weak right leg (I can walk about half a mile before it gives out). I have had double vision for 4 years now, and my only relief from it is prism glasses, but apparently if you wear those too long, the eyes shift and adapt, causing some additional problems, so I wear them as little as possible. The double vision has become worse lately, though, and I am now considering looking into eye surgery, or getting on Tysabri (I have been on everything else that's out there, and am currently on Rebif). I can't find enough information, though, that will let me know if Tysabri can help the double vision to go away. Did any Tysabri users on here have double vision before starting the treatment and, if so, did the double vision problem improve at all after starting the treatment? Thanks for any help you can provide!
I had ongoing double vision after a relapse that lasted until I was on Tysabri. I also had nystagmus and couldn't control my eye movement.

After 6 months of Tysabri I had an eye exam and my vision was back to pre-diagnosis level. The opthalmologist was amazed and asked what I was on for treatment.

It's been 25 infusions now and my vision has remained at pre-diagnosis level.

Tysabri and vision:

http://nationalmssociety.org/news/ne...x.aspx?nid=134
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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