Congrats on the progress, Natalie! Ty infusions are no small thing ~ you need to have confidence in the people who are administrating it..
My next infusion is coming up Monday. I'm thinking positive thoughts, especially since the first one went so well.

Thanks Wiz!

Linda, I'm sorry to hear you are having problems too. Hope it gets resolved. Keep us posted.

Polar, good luck with the next infusion. You are so right about having confidence in the people who administer it. That is so important -- it is stressful enough being on this drug.

The best news of all that I forgot to report is that the cost will stay the same (still a $30 co-pay visit for the infusion instead of 20% of the total infusion cost). Yea!!

Thanks Natalie-I think it's resolved AND the way I wanted it
Another YEA for your best news

According to the VP of Drug Safety at Biogen the chance of getting PML on Tysabri are lower than initially suspected based on the clinical trials. Maybe someone posted this article already.

http://www.medscape.com/viewarticle/702373

The incidence of PML in patients taking natalizumab for 1 year or more is 2.4 per 10,000 patients, 1.4 per 10,000 in patients treated for 18 months or more, and 3 per 10,000 in patients treated for 2 years or more, with confidence intervals "that are overlapping," said Dr. Bozic.

I'm not sure what "confidence intervals overlapping" means.

Finally, some good stats on Tysabri & PML..Thanks!

I've been feeling more tired the past few days. I checked my calendar and noticed it will be five weeks when I get my infusion on Monday. I think I really need it, lol.

In the morning I'll be getting an MRI of my C-spine and brain too so hopefully everything is looking extra good in there.

Hey Wiz, sorry you have been dragging. Hope the MRI results are good!

Hey everybody!

I've been a lil MIA lately!

I'm working too hard to get everything that needs to be done at home DONE before it gets too hot to work in the yard, working too much at my job, not sleeping enough, and getting ready to start another job in addition to everything else. I'm actually looking forward to this, since it's a job I love and I can't wait to restart it!

I had to do a bunch of recerts too so I have been averaging about 4 hours of sleep a day. I'm beat, my sleep schedule is way off and life is still good!

I go for # 26 today!! Yay!!
I plan on taking a few minutes to celebrate!

I couldn't sleep so I got up to putter and I was thinking about how it's been TWO YEARS since I started Tysabri. I've only missed one infusion and I am just so pleased with the NON progression and the NO DISABILITY that has come from this drug. What a freakin' miracle this stuff is for so many of us!

I know I wouldn't be able to do what I am doing now if it wasn't for Tysabri. All the carp before is almost just a bad memory now, the cycling through the relapses, the vision problems, the balance garbage, the cognitive malarkey, and the utter despair in knowing that I was losing me!! Having all that blackness turn to joy is amazing!

Time IS brain, my friends. I'm so glad I still have mine and that you all still have yours and that we can come here and rejoice in our triumphs and find support when it's not going so well!

Today will be a GOOD day!

...and it WAS a good day!

The sun was shining, it was actually hot out, the infusion went as usual.

There was NO chocolate cake...so I will have to make one for myself!

Hope everyone is doing well!!


(p.s...I found my previous post on an investors board today...)