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05-29-2009, 03:55 PM
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#61 | ||
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 Linda |
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06-02-2009, 11:48 PM
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#62 | |||
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Grand Magnate
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..Keeping fingers, toes, etc crossed for you Natalie!!
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06-05-2009, 06:00 AM
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#63 | |||
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Magnate
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Happy Anniversary Tysabri!
Three years ago today, after a LOT of hard work by MS patients, friends and believers, Tysabri was re-approved by the FDA. On July 23, 2006, infusions were resumed. Here we are today.  I am one of those people who believed and fought, who now experiences the tremendous benefit of Tysabri as a therapy to treat MS. Have a lovely day, everyone!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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06-05-2009, 08:51 AM
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#64 | |||
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Elder
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Quote:
 I didn't fight, but I'm happy it's back too RW!
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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06-05-2009, 04:26 PM
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#65 | |||
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Magnate
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shoooo Wiz!
Look at all you do now! Your posts help a lot of people. People see how you are doing and what you have to say and it helps them decide. It helps them to know there are people who can answer their questions and support them, to compare symptoms and stuff that happens.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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06-05-2009, 10:33 PM
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#66 | |||
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Whoohooo!!!!!! My Tysabri antibody test came back negative. Guess it was just run of the mill drug side effects. Slowing down the infusion helped. I go for #12 on Monday!
  
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On Tysabri and love it. . |
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06-06-2009, 08:19 AM
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#67 | |||
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Magnate
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Oh YAY Natalie!!!
That just tickles the cockles of my heart to hear that! I truly feel for people who have trouble with infusions. Mine are such a walk in the park. I know I haven't had any antibody tests, cause I haven't had any adverse effects at all. I'm not saying they won't ever happen, but so far, so good! Good Luck with your infusion Monday!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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06-06-2009, 01:52 PM
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#68 | ||
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Member
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Quote:
 Linda |
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06-08-2009, 08:20 AM
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#69 | ||
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Junior Member
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thanks Riverwild for whatever you had to do to get Tysabri back out. You and anyone ese that helped. I am going on number 9 in a week and a half. I feel better now that I am off the Rebif it only took a month or so to feel that diffrence. Some things from MS have lightened up after about 3 infusions and most important i hav e not had any exacerbations in almost 1 year.
I live in Cape Cod from April to Sept. I did have a problem finding a plce that would take me as aguest to do my infusions. I have to travel almost 2 hours. I did my first on last month. April was done in NJ 10 min from home. That is my only problem but fortunately i am doing well with the infusions since i take a Clariton before each ninfusion. Unlike the Benadryl they gave me the one time i had a reaction it fortunately does not make me sleepy. I made stops going back but going they made my appointment 9 30 GPS said 2 hours 4 min and people told me i might hit traffic once i got over the bridge so i lef tat 7. 1 bathroom stop and i was there in 1 hour 55min. If anyone knows the area they have me doing infusions in Dartmouth, Ma. There are 22 closer but they said no go. They happen to be very nice here. Good luck to all laurie f |
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06-08-2009, 02:21 PM
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#70 | |||
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Magnate
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Glad to hear things are going well Laurie!!
I used to live down in that area. That's a LONG way to go for infusions! Just coming off Cape is hard! Going back has to be worse! Do you come over the Bourne bridge? Bleah at the traffic as it gets warmer and more people head that way! Is it insurance that makes you go to Dartmouth?
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | ewizabeth (06-08-2009) |
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I don't want to give my Ty. up!! #12 is coming up soon.
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