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Old 06-19-2009, 10:24 AM #20
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Glad to hear everything is going well, Wiz! Yay for # 27!!!

That is wonderful news about your business selling so quickly! You've been working hard on it for a long time and after all the stress and strife, it's so nice to hear it's paying off and that you can be out from under it all! I bet you are really going to miss your co-owner's spouse, aren't you...

I'd post on my experience with heat and MS but I can't because it's been 50s and 60s here and rainy for weeks now!

I also had # 27, yesterday. No problems, no concerns.

I met with the neuro afterwards and he asked why I was yawning. I had to tell him I had been up since the day before at 1:00 p.m. He wanted to know if I was taking provigil to get me through it and I hadn't had any for several days. He asked me to rate my fatigue and noted it was one of my chief complaints when I first saw him. I rated it at a 6 at that moment, even after being up for so long! I finished my appointment, went grocery shopping, and stayed up until 9:30 pm last night!!!



He didn't have any further information yet on the newest PML case confirmed June 10th outside of US with 35 infusions done.

One report has it being a person in France, but they didn't start infusions until spring of 2007 so I don't know whether it's actually France or Germany/Sweden. Germany and Sweden started their infusions in 2006, so it would stand to reason that it was one of those countries, but it also could have been a person from France who started in one of the other two countries before Tysabri was available in France.

I do have information that says the person is doing well after PLEX/immunoabsorption treatment and mefloquine, but is at the peak time of risk of IRIS and the treatment of IRIS also requires high dose steroids, so they may be back in hospital by now. The patient was reported to be ambulatory with some left sided weakness and in rehab for that.

I'll post if I hear any more.

Hope everyone's doing well!! I'm praying for SUN! (this as it's pouring out yet again!)
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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