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Old 10-28-2009, 09:21 PM #11
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Natalie8 Natalie8 is offline
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
Posts: 900
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Wow RW. Thanks for the very useful information. I feel most optimistic about the quick production of Yednock's assay. Let's hope it will happen soon. The 1:400 risk came from Biogen? I'm quite surprised. Again, was this rate for people after 3 years?

I had infusion #17 today. The usual infusion nurse was out today (had a substitute) so I couldn't get any information. I'm still waiting for my doctor to call me back after leaving a message on Monday. That does not make me happy. It is a big clinic but really they should be care.

Anyhow, the infusion went better than usual. I came home, fell asleep for 4 1/2 hours, woke up and had just mild nausea. That's it!! This really would be the most perfect drug in the world without the PML risk. I love my Tysabri and what it has done for me (no relapses, no MS symptoms, no change on MRIs). However, my concerns about PML continue to mount and I'm not sure what I will wind up doing in the next couple of months. I'm just hoping I can get as much information as possible to make the best decision for myself.
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