I just got off the phone with my neuro.

I had postponed my next Ty (#37 scheduled for 11/12) until I had some answers.

The good news is that I continue to test negative for the JC Virus (A few of our local labs can test for this). My MRI's look great. I feel good.

She did tell me that the presence of the JC Virus can make one more susceptible to PML BUT the absence of the JC Virus doesn't necessarily mean one is not going to get PML. Interesting.

I also mentioned my concern about the pre-infusion question regarding 'new or worsening symptoms'. I always hated that question, because the symptoms mentioned are just normal ms stuff, and my symptoms always seem a little worse as I near my next infusion. Her answer was that symptoms that worsen just AFTER an infusion, not just BEFORE, would be a red flag.

So, in a leap of faith, I am back on schedule for Nov 12th. I'm also having my MRI that day.

My neuro wanted me to thank EVERYONE who is advocating for the information that we need and deserve. She wishes every patient of hers was as diligent...

Keep fighting & Be well,