Closed Thread
 
Thread Tools Display Modes
Old 12-28-2009, 07:24 PM #1
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default May be Mad at Biogen but love my Tysabri !

Just got home from #41 and baked 7 doz cookies in my HOT kitchen!!!
Grammie 2 3 is offline  
"Thanks for this!" says:
Natalie8 (12-29-2009), Riverwild (12-29-2009), SallyC (12-28-2009)
Old 12-28-2009, 09:18 PM #2
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

Going in for #2 tomorrow....so how many of these blown veins do I have to deal with before I start feeling better?
__________________

.
I am not spoiled!
legzzalot is offline  
"Thanks for this!" says:
Natalie8 (12-29-2009), Riverwild (12-29-2009)
Old 12-29-2009, 01:54 PM #3
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
Default

Quote:
Originally Posted by legzzalot View Post
Going in for #2 tomorrow....so how many of these blown veins do I have to deal with before I start feeling better?
Good luck, Leggz!!!!!!!!!!!!!!!!!!!!!!

I hate it when they try to insert the needle in my hand!!!!!!!!!!!!!! The only vein that really works well is inside my elbow on the left side. It doesn't hurt as much and it always works the first time!!!!!!!! After using my hands on a hit and miss basis for 20+ infusions they finally began to use the inside of my elbow. It was a different infusion nurse who tried it. When the others tried the inside of my elbow they always got too much blood backing up into the tubes I'm going to a different infusion center....the same drs but different nurses and lab assistants.
shayna is offline  
"Thanks for this!" says:
Natalie8 (01-04-2010), Riverwild (12-30-2009)
Old 12-29-2009, 02:44 AM #4
Natalie8's Avatar
Natalie8 Natalie8 is offline
Member
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
Member
Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Talking

Quote:
Originally Posted by Grammie 2 3 View Post
Just got home from #41 and baked 7 doz cookies in my HOT kitchen!!!
Now that is awesome news!! Congrats on #41!!! What kind of cookies did you bake? Anything with chocolate?
__________________
On Tysabri and love it.
.
Natalie8 is offline  
"Thanks for this!" says:
Grammie 2 3 (12-29-2009), Riverwild (12-29-2009)
Old 12-29-2009, 07:25 AM #5
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Congrats on # 41 Linda!
I'll take any flavor cookie you are passing around!

Leggz- ask the nurse to use your cephalic vein the next time you go in. Most nurses insist on using a hand vein but I only use the cephalic vein that runs along the side of the wrist, usually have them hit it on the forearm before the wristbone. It's a big fat vein and hard to blow unless they forget to take the tourniquet off!

I'm scheduled for # 34 Thursday!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline  
"Thanks for this!" says:
Grammie 2 3 (12-29-2009)
Old 12-29-2009, 07:40 AM #6
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

Thanks RW. ... but they normally start there. For some reason I only have one good vein... which is in the elbow on the right side and they have stuck it so many times it is forming scar tissue around it. They normally blow the two in the forearm, followed by popping the top of both hands before I insist they just use the elbow.
__________________

.
I am not spoiled!
legzzalot is offline  
"Thanks for this!" says:
Natalie8 (01-04-2010), Riverwild (12-30-2009)
Old 12-29-2009, 12:33 PM #7
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default

Quote:
Originally Posted by Natalie8 View Post
Now that is awesome news!! Congrats on #41!!! What kind of cookies did you bake? Anything with chocolate?
Sorry Natalie, No Chocolate... a type of biscotti
Grammie 2 3 is offline  
"Thanks for this!" says:
Natalie8 (01-04-2010), Riverwild (12-30-2009)
Old 12-29-2009, 01:45 PM #8
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
Default

Quote:
Originally Posted by Grammie 2 3 View Post
Just got home from #41 and baked 7 doz cookies in my HOT kitchen!!!
Wow, Grammie!!!!!!!!!!!!!!! I'm so sleepy after an infusion that I can hardly keep my eyes open....LOL Congrats on #41. I have #28 coming up in 10 days. That will make it 5 weeks since my last infusion. After this one I'm going to try and go for 6 weeks between infusions.

I just arrived home from spending 15 days with the grandchildren and I need to rest. I've noticed that every time I get back to Nevada from spending time in California with my family that my m.s. seems a bit worse for a few days....I'm shaky and weak But, after I rest for a few days I'm back to normal...as normal as I ever get I try to rest while I'm in California but with 5 grandchildren and my "need" to spend quality time with each of them I must not get as much rest as I think I do.
shayna is offline  
"Thanks for this!" says:
Grammie 2 3 (12-30-2009), Natalie8 (01-04-2010), Riverwild (12-30-2009)
Closed Thread


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
LDN Information & Check-in 2 SallyC Multiple Sclerosis 827 07-07-2017 09:46 PM
Tysabri Information & Check In Curious Multiple Sclerosis 988 04-16-2009 05:09 PM
LDN Information & Check In SallyC Multiple Sclerosis 844 01-15-2009 11:40 AM
Part 2...Medicare Part D/Prescription Coverage Stitcher Parkinson's Disease 1 12-17-2006 12:50 AM


All times are GMT -5. The time now is 12:28 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.