Originally Posted by shayna

The infusion center I go to has 10 recliners for the patients receiving chemo or Ty. I don't know if they infusion anything else......they refer to it as "the chemo room". The drs are oncologist. My Ty infusions cost between $5500 and $6000 per infusion depending on whether or not they draw blood and I talk to the dr. I'm lucky that I only have to pay the $25 co-pay for a visit to a specialist. But, my monthly medical insurance is $900 It's hurting us financially but I refuse to give up my medical insurance. They can't kick me out because this is covered under my husband's plan and he is "grandfathered" into their insurance policy If I give this up I'm not sure that any other insurance will take me. Ty is expensive!!!!!!!!!!

When I went for my last infusion there was a Ty patient there that I had not seen in a very long time. She told me that she couldn't afford her medical insurance last year so she had to go without the infusions. She's back in a wheelchair now She's really hoping that once she's had several infusions she'll be able to walk again. Prior to having to stop the infusions she had been on Ty for 2 years.

My next infusion is scheduled for February 19 because I'm trying to wait 6 weeks between infusions. I'm hoping it will decrease my chances of getting PML. The fact that there are now 31 confirmed cases does not give me a warm fuzzy feeling. I hope they have that assay available soon!!!!!!!!!!!!!!!!!!!!!! But, if I test positive I'm going to hate giving up my Ty.....LOL