Update and question - I went for infusion #25 on Fri and got a not so nice surprise. Since I am over the two year mark, my Neuro. has gone from every 3 mo blood-work to blood-work every two months. I broke into tears. (I am not an easy one to get blood from and this has been a bad year...I was not prepared for a draw.) Has anyone experienced or heard of this?
This is not a small practice, the Neuro is one that was involved in the testing of Ty and one who helped bring it back... I have seen other changes in their TY procedure in the last few mos. I understand the other changes, but this seems like overkill. Is there that much fright of PML now or another reason?