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Old 05-22-2010, 05:39 AM #11
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Natalie,
According to my doc he had to apply to be a testing site. He wants to do all his draws on the same day so he can send them all out at the same time, but that is due to costs for shipping, since they have to be shipped according to specs. He applied for all his Tysabri patients. He has a number of people who he monitors, because MS is his specialty and because a lot of other docs send their patients here for infusions, and he takes over when they start as he is the doc associated with this hospital. In addition, we are in a very rural area and for many people this infusion center is the closest to them. I was amazed at the number of people who are being infused here now. I spoke with the nurses while I was there and they said they have grown in numbers over the last few months. He said he will release the results to those who want to know and if the patient doesn't want to know, they will know anyway if they test positive since he will be taking them off Tysabri and steering them towards one of the others drugs available.
I know that if I test positive, I will be off Tysabri. We didn't discuss what would happen after that, whether I would be on a drug holiday or off completely and I don't want to know until the results are in. I prefer to wait and see what comes of the testing.

I suppose i have to start doing homework again on the new drugs. I am not looking forward to that and I figure if I am positive, I'll deal with it then. I want to enjoy my summer without having to read scientific journals and textbooks and studies!!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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