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Old 05-28-2010, 07:20 PM #11
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
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Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I am sooo glad you came back to let us know what happened!
I agree with Linda, if I went on the holiday (doesn't that sound weird when talking about drugs?) I'd be back on the 28 day schedule.

When I said I wasn't hung up on time I should have qualified that statement, in that I have agreed to give the decision to my doctor as far as a drug holiday goes, because he IS the doctor. I wouldn't have been happy about it but I'd have done it. I so don't like it that I agreed very quietly once and never mentioned it again in hopes that he has forgotten!

Here's hoping that everything gets back to your "normal with Tysabri" normal!

I am surprised that you have to re-enroll. It was my understanding that once enrolled, you were always in, and that you had to restart but not go through the whole paper shuffle again. Maybe it was because you went over a certain amount of time...

(why can we never ever get a straight answer from Biogen????)
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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