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Old 07-18-2010, 11:39 AM #11
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Location: Salem, VA
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azoyizes azoyizes is offline
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Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
15 yr Member
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I had my 11th Tysabri infusion yesterday. Everything went well. Getting out in the heat has made my arms weaker, and I'm hoping the T will get me back to weak-normal.

I had a neuro appt. last week. He mentioned that protocol is to take Tysabri for two years, then take a 6-month break from it. Is that correct?

Also, I had an MRI two weeks ago. Results were that nothing has changed. So, that's good. My veins are becoming hard to put an IV in. The woman who put my IV in before the MRI was a little too rough, and I should have said something but I kept my mouth shut. It felt like she was digging around with an ice pick.

With my tremors, the technician puts pads between my ears and the plastic helmet to hold my head perfectly still since I can't do it myself. Before she put the pads in, I requested earplugs. She tried to tell me that the pads would be enough, but I insisted. She acted like I had asked her to scrub my kitchen floor! The B----. This is the same person who used an ice pick on my poor vein.

The other technician who got me out of the MRI and helped me back to the changing room was a whole lot nicer. He acted like they all should act, instead of getting all hot and bothered because I made a very small request. Oh well, hopefully that will be the last MRI now for two more years.
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