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Old 07-28-2010, 05:42 PM #11
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Location: Fredericksburg, VA
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legzzalot legzzalot is offline
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Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
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No such luck! On the plus side, they only blew one vein and I got to spend the day with my best friend, and DH2B went to store and decided to surprise me by picking up most of the stuff DD needs for school, and a new external hard drive for me! That was pretty sweet.

But, on the not so plus side... best friend went with me today because she had an appt with my neuro about a brain stem injury from years ago. While I was there I moved my follow up to next month, and talked to neuro. The newest set of tortures my body is creating seem to scream "new lesions!!". I had planned on doing one more infusion next month and then looking at MRI to make the decision whether to stay on the Ty or to get off of it and try to fix the broken back.

Now she wants a new set of scans BEFORE my next infusion, and if I am presenting with new lesions as she suspected she is pulling me off of Ty all together. Can't say it is a crying shame as I have yet to see any improvement, but I can say I am tired of trying every drug they have available and I am not too sure that I want to go play lab rat at clinical trials, so I dunno.
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