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08-31-2010, 11:17 AM
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#641 | ||
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What outstanding news
 I, too, am so happy for you!!! I am considering not being tested... as I only want to hear good news  Linda |
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08-31-2010, 11:20 AM
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#642 | ||
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Quote:
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08-31-2010, 01:02 PM
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#643 | |||
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Yeah for RW!!!! This calls for a party. I hope you are out celebrating!! I'm very happy for you. Yeah!! Yeah!! Yeah!! Yeah!! I could keep going.....
__________________
On Tysabri and love it. . |
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08-31-2010, 09:40 PM
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#644 | |||
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Grand Magnate
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RW, I'm so happy for you!!!
 ...but, I haven't been following this Ty thread and I don't know what the JC test is.  But if you're excited, then I'm excited for you, friend! Hope you enjoyed your meet and eat with the Wabbit.
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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09-01-2010, 03:36 PM
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#645 | ||
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Junior Member
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RW, I'm so happy for you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I hope we all test negative...if we have a chance to be tested. My neuro is still waiting for Biogen to co-operate. I'll be calling my case manager at Biogen this afternoon.
huge hugs to all  ,Shayna Quote:
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09-02-2010, 08:17 AM
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#648 | ||
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| "Thanks for this!" says: | Riverwild (09-10-2010) |
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09-02-2010, 08:15 PM
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#649 | ||
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When the rep asked me if I had any questions
 let me think !!I asked about jcv test coming back positive. She said 80% of adults have been exposed to the virus-it is dormant and 65% of adolescents. It doesn't mean that 80% will get pml-just that they've been exposed to the virus. Fifty percent of those that contacted pml had received immunosuppressant drugs prior to Ty. As of 8/4/10 there are 71,400 people who have had Tysabri (I said 1 or more infusions-she just laughed ...??) world wide 40,800 are in the U.S. Biogen does have 2 financial aid programs but does not help with infusions. I complained again that we want info like it was presented till 7/24/08. I told her that next month will be 4 years for me and telling me chances of pml increase with time on Ty means nothing - I need and have the right to have real odds so I have the info to make an informed decision. She agreed, took notes and said she will pass on. Just wanted to share Linda |
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09-09-2010, 02:48 PM
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#650 | |||
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Well I am currently getting infusion #23 right now. Just waiting for the saline drip to finish. Today was nice--I got put in a room by myself (instead of the usual row of chairs with others). It was quiet and I could kick back and read and nap. Every time I come for an infusion I realize how much I love Tysabri! #24 is scheduled for November and then after that I am not sure what will happen. The clinic is still waiting on approval for the JC virus test. Big medical school = big bureaucracy. With a negative test I would love to stay on the drug. Anyhow, hope everyone is doing well!!
__________________
On Tysabri and love it. . |
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