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#1 | |||
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Magnate
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My now passed on grandmother (mother's side) was diagnosed with FM.
I'm fairly certain IF they had looked further than they did at the time (with newer technology), they would have probably found MS. It's been the belief of my mother and I since I was diagnosed with MS and we began doing our own research and putting together the pieces, so to speak.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#2 | ||
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Junior Member
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Thank you
There seem to be so many similar symptoms with Fibro and MS. I have told my DH that when I die, i want an autopsy! Then they can write on my headstone "She was right" ![]() In NZ, it is difficult to get another opinion with a neurologist. They all work in the same hospital. Feeling rotten at present. Amitriptyline not helping ![]() Take care Lesley Last edited by Leanz; 05-03-2009 at 06:26 PM. Reason: Change |
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"Thanks for this!" says: | NurseNancy (05-04-2009) |
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#3 | |||
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Grand Magnate
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By this point, if you had MS it should be obvious by your MRI.
I did an informal poll recently, and 100% of the people with mild to moderate MS-like symptoms were either dx within the first 18 months (most within 6 months), or the only reason they weren't was because they didn't have a MRI (by choice, or lack of cooperation by their doctor). Insist on a MRI. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | Leanz (05-03-2009) |
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#4 | ||
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Junior Member
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Thank you Lady_express
I have not had an MRI as when I went to the neurologist he said I didn't need one. I was too old to have MS. Some doctors in NZ don't like patients (esp nurses) questioning their decisions. Cheers Lesley PS How is your duaghter doing? Hope she is doing well and your appt in April went well ![]() |
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#5 | |||
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Grand Magnate
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perhaps you could find a medical article on MS and ages of dx.
i don't know if you have an MS society in NZ but we do here and they offer all kinds of info. plus, the website for the NMSS and here offers great info. when dr are presented with credible publishing they have to at least give it some credence.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | Leanz (05-05-2009) |
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#6 | |||
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Senior Member
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How are you feeling, Leslie? What season is it there in NZ? I always find that a flare-up occurs every change of season. You know, the longer I have this lousy disease (and fibro), the more it becomes a question mark. Up until yesterday when I found a new fibro website, I didn't realize that spasms were a part of FM. I was blaming them entirely on MS. Whatever is causing them, I wish they'd stop!
Yes, as was mentioned before, try to get an MRI. That's how I was finally diagnosed back in 1990. Never did have the other tests, but had optic neuritis twice many moons ago -- 1976. Are you extremely weather sensitive? Looks like we're in for a few days of rain and the "Ouchies" are making themselves known. It's mind boggling how similar so many of these autoimmune things are. Hope you're doing somewhat better!!! ![]()
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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"Thanks for this!" says: | Leanz (05-05-2009) |
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#7 | ||
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Junior Member
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Thanks Nurse Nancy, a good idea, and yes we have MS society in NZ.
Judy, It is autumn here and we have had some very warm days and now it is cold! I have kept a record of barometric pressures to see if the body responded, and it does - somewhat. I am unable to cope with warm/hot weather. Am unable to think - and thinking is no longer a strong point at best of times. I was unaware that spasms were part of fibro. I am sure lots of my pain is from the muscles always contracting. And the tiredness doesn't help ![]() Thanks all for your thoughts Cheers Lesley NZ |
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