Reply
 
Thread Tools Display Modes
Old 04-28-2009, 01:29 PM #1
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Thanks Harry and Chris.

Chris, as I mentioned in my first post, he is full blown SPMS, and does not have relapses/remissions any more. He's gotten around it with the phoney classification, but Tysabri would not be approved for him otherwise.

I agree that he should get a new neuro. This guy says his neuro "hasn't even read up on Tysabri", so I just don't see how he could be a registered through TOUCH.

I guess changing neuro's isn't a good option for him . . . but I will reiterate that.

Thanks, Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 04-28-2009, 03:50 PM #2
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

If this person is in the USA, he is under the TOUCH program. That means that the Tysabri prescription has to be renewed every 6 months. That means the doctor and infusion center have to be TOUCH certified.

If he has no confidence in his doc, he should find one that he DOES have confidence in.

I can't imagine going through all this without the doc on my side and alert to what is going on with my treatment. While my neuro doesn't treat my general medical problems, he would consult with my GP as to what is going on and what to do about it, since he knows more about the drug than the GP does.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (04-29-2009), tovaxin_lab_rat (04-29-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Question: safe to combine Tysabri with minocycline? Natalie8 Multiple Sclerosis 10 10-10-2012 01:10 PM
Tysabri Dosage Question JoeMac Multiple Sclerosis 3 09-24-2008 07:48 AM
Tysabri Question BaxterTheBunny Multiple Sclerosis 6 05-20-2008 09:01 AM
To Tysabri or Not To Tysabri--That is the question! Keely Multiple Sclerosis 3 03-10-2008 11:46 AM
Tysabri Question NaeNae Multiple Sclerosis 11 02-26-2008 02:06 PM


All times are GMT -5. The time now is 11:10 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.