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Old 04-30-2009, 09:27 AM #5
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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As I went through the diagnosis process, they did a blood draw of about ten tubes of blood.

I asked why and I was told that they take so much blood so they can rule out the mimics.

Tests were run for:

Vit b12 level
Vit E level
Erythrocyte sed rate
C Reactive protein
Antinuclear antibody
Rheumatoid factor
Thyroid stimulating hormone
cortisol
glucose
anti-borrelia burgdorferi antibodies (Lyme)
RPR(syphilis)
anti-HTLV-1 antibodies (tropical spastic paraparesis-HTLV1 associated myelopathy)
anti-HIV1 antibodies(AIDS)
very long chain fatty acids(adrenoleukodystrophy,adrenomyeloneuropathy)
Gene studies to rule out Leber's disease, mitochondrial cytopathies.
Sjogrens, Sarcoidosis,granulocytoma, Lupus, fibromyalgia
along with all the usual stuff they look for in blood (liver panel, urinary stuff, etc)

It took a long time to get all the test results back, it cost the insurance company a whole lot of money, and none of them showed anything abnormal.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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