Me too. I found a dr. that specializes in the RRMS type. From what I've been able to research those are the ones that have a 15% chance to be symptomaitc, but with no lesions on the brain, but on spinal column (though a lumbar puncture to confirm those sounds not so go).

We'll see. I'll let you all know what she says, but from her resume, I think I'd be willing to accept what she comes up with more. Her consults are a min of 45 min, to a 90 min max...Sounds like she talks to you and gets a full history.

I'll check back in after that appointment next week.

im sorry this nut job was assigned to you. that stinks!

sounds like a few of my nut job neuros I have met... good luck with the other dr.. hugs,sarah

I got the printout of my appointment with this guy. His offical diagnosis? Malingering and Somatoform. Basically that diagnosis fits ALL people with fibromyalgia and that pesky vulvar vestibulitis (with abnormal nerve growth that I have) that's all in my head.

It's amazing how well trained a dr. he was; he got all that in a 10 min conversation with me

Yep, all in my head. I want to be like this. Guess the little remission I had after the breast reduction, I felt like I needed more attention, I obviously didn't like the fact I could: return to work, have my own money, be able to go camping with my horse and spend 3 days sleeping on the ground and riding 40+ miles, work my horse, teach lessons, hang out with my friends, go dancing, sleep without scary monster dreams. . .yeah, not enough attention. So instead I want to have to plan to leave the house, not drive, forget crap in class so I am getting a D in English, can't ride my horse without assistance, have monster dreams, hand shakes,. . .yeeeaaahhh, that's what I want.

to quote Charlie Brown . . . ARGGGGGGGGGGGGG!!!!!!!!!!!!!!

I love doctors

Hi regigirl,
Welcome to the forum. Thanks for joining in. Nice to meet you.

Artiemouse I love your dog. Beautiful.

Hi again kristen 8283. Anything new going on with you"

Anyway, it's a common problem many people face like you and artiemouse have found out. If all the ducks are not in a row, then it must be something else, they say. Or they make you think it's all in your head.

Many times friends and family, including the spouse, may not believe it either. They rather not talk about illness. They don't want you to be sick so they don't want to hear about it.

I still have people in my family that don't want to hear about my MS 29+ years later. They may call me and never ask how are you feeling? If I mention I have this or that today, they change the subject. People can be strange. If you look well, take care of yourself, and dress nice, then they think you are okay.

They don't know how you are feeling, and probably don't want to know. If the dr confirms no MS (at this time) then they think you are making it up.

I was diagnosed after being in a hospital for a week getting all kinds of tests. No MRIs back then. I was diagnosed by clinical exam, LP, and VEP. Many other rule out tests all week and Grand Rounds for odd tremors.

Years later I had my first MRI when they came out, in an open machine, with very low strength to the machine (the Telsa) and no GAD dye. It showed nothing, no lesions so they said the brain is clear and the spine looked good. Still I had my diagnosis, with a clear MRI at that time. I didn't know they would not show up in an open one.

My MS Specialist ordered new MRI's. In a closed machine with a higher Telsa with /and without GAD. I had many lesions that showed in my brain and in the right places. I had to get this test to be put on the DMD's or my ins company would not pay for the Injectables.

So in my case I was dx'd with MS without any MRI at all.

The guy who told me I was "too old" had a copy of my MRI in front of him with 12 lesions on it. A long history on paper of sx and issues. He was dimissive and rude. After talking to many other of his patients, I have decided that its just "HIM" it wasnt me.

Years ago after having headaches, dropped foot, and optic neuritis the MRI according to my MD shows "WNL" or within normal limits. I was given an anxiety lecture, and told to go home, with a bottle of Xanax. I was sent to see someone about migraines, who told me my headaches didnt fit the normal pattern of migraines, and he felt that I was "malingering" another good term.

After taking a full retirement and moving to the back woods of hickville. I saw a local MD who said "WAIT!" he did a massive exam, including calling for my old films, which clearly showed lesions, and sx way back when, and insisted that I get into the big boy MRI, not the open one, have contrast, and a follow up. What a difference from being dismissed to being believed. I had long since given up on getting any proper attention, and had even convinced myself that i was just "high strung"

Its all in your head...yep, most MS is.

Thanks, so it's not just me. . .lol. . .I just thought it was very unprofessional to be given that 40's woman's diagnosis of "hysteria" (that it's all psychological) after a 5 min talk + 5 min exam. We'll see what the new dr says. I am willing to take her recommendations as to what is going on. I've heard good things about her.

One of the first neuros I saw after my MD said "I think you have MS" sat me down, started asking questions,and then said..."I'm Sorry my dear, but you are too OLD for MS!" I said "not if I have had it for 10 years, and no one found it before now!" He argued that had I been "crippled" with MS for 10 years, I WOULD have known it! then he gave me a dismissive exam, and said we would wait another six months and redo an MRI.

I went to an MS clinic who said they hear that all the time. You CANT be too old to be dx with MS. It doesnt matter if you are retired now, or fighting to be retired. (I was already retired) and they went about the business at hand. Took careful measures to make sure they were not missing other things, and said "you HAVE MS!" I cried. They went on to say "you have had MS for a long time, and I am sorry no one caught it before now."

When I returned to the first guy, as soon as he walked in the room he said "see, I told you its Ms!" My husband said he was trying to be funny. I said he was just a butthead. Brilliant man with a wonderful rep, but a butthead none the less.

I would get to an MS clinic if I were you.

Wow, thank you. What a horrible experience. I hate that they dismissed your telling of the symptoms having been long lasting. Did he have an MRI before he told you you were "too old" to have MS? Was your scan clean?

I am going into a clinic on Tuesday. I got her name from the National MS site. The notes said that 80% of her patients are/were diagnosed with RRMS and she has a good rating from her patients.

For me this round of symptoms,the second time I've had the same type of symptoms, just worse this time around. The first time was about 4.5 yrs ago. The neuro I saw that time said that the symptoms fit, but because my MRI came back clean he wouldn't make the dx. He said that if these symptoms returned to come back.

It's just frustrating. These people that we go see we are suppose to trust. Trust that they will listen to us, make appropriate diagnosis, and look at everything thing, not just what they feel like at the time, rushing through patients because THEY are running late and want to get home earlier.