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Old 03-29-2010, 02:22 PM #6
regigirl regigirl is offline
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Join Date: Mar 2010
Location: Muscle Shoals, AL
Posts: 5
15 yr Member
regigirl regigirl is offline
New Member
 
Join Date: Mar 2010
Location: Muscle Shoals, AL
Posts: 5
15 yr Member
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kristen8283, I just registered as a member to this web site just a few minutes ago. I know what your going through, it's called "medical hell". It took about 6 years for me to be diagnosed and I was just diagnosed last October. I'm so tired of incompetent doctors. they did one non-contrasting MRI on my brain with a very weak MRI and from that result declared that I absolutely did not have MS and never looked in that direction again. I had to do all my own research and demand the tests that I thought I needed. Finally I got a contrasting MRI of my spine and low and behold that is where my lesions are. I've got 2 very small lesions on my brain that could not be detected on a non-contrasting MRI, my lesions are on my spine. I finally found a MS specialist that found it, he did contrasting and non-contrasting of my brain and spine. He is the Dr. that finally found it. He said he had heard many stories just like mine. I thought I was loosing my mind! I'm dealing with anger issues right now, but it's not because of having MS, it's about how I've been treated, not only by the medical community but also by my friends. I used to run 2 miles every morning until the weakness, balance and fatigue overcame me, I was very fit and healthy, a size 6. Then of course I gained weight and a friend told me that the only thing wrong with me was that I was just getting older and possibly going through menopause and that I was just going to have accept that I wasn't going to be slim and pretty all my life. People said that I couldn't have MS because I was too old. The last four years have been so hard, there is no support group in our area and I'm angry. Again I'm not angry about having MS as a matter of fact I felt victorious when I found out that I did indeed have MS. I had done so much research on so many different diseases and it always came back to MS. It's been the treatment from some friends and my spouse that has caused this anger, I wasn't able to even say MS in my home or around some friends, so I just kept my mouth shut.
Keep searching for answers, find a Dr. somewhere that will listen to you. I did and it's really paid off. Thanks for letting me vent.
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