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Old 05-03-2009, 03:51 AM #1
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Take a breath, and let it wash over you.
I feel like I've had a crap deal too. I feel really hard done by. But what can you do?
Start taking control, take the copax in your stride, and do what you can to maintain your health for as long as poss.
You'll cope.
I've never been one for 'one day at a time'. I was a worrier and a planner. Or at least I was until April 9. Now I'm so much calmer.
Our lives have changed. 'Nowt can change that.
Good luck.

One thing I did was name as many diseases and conditions I would rather not have. Most were more common than MS, and much scarier. So maybe this isn't so bad...
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Old 05-03-2009, 04:14 AM #2
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Quote:
Originally Posted by pud's friend View Post
Take a breath, and let it wash over you.
I feel like I've had a crap deal too. I feel really hard done by. But what can you do?
Start taking control, take the copax in your stride, and do what you can to maintain your health for as long as poss.
You'll cope.
I've never been one for 'one day at a time'. I was a worrier and a planner. Or at least I was until April 9. Now I'm so much calmer.
Our lives have changed. 'Nowt can change that.
Good luck.

One thing I did was name as many diseases and conditions I would rather not have. Most were more common than MS, and much scarier. So maybe this isn't so bad...
I agree, there are so many worse diseases than MS. I'd rather have MS if I have to have a weird disease that causes me all sorts of funky problems.

MS sucks, but cancer probably sucks a lot more.
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Old 05-03-2009, 05:06 AM #3
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I had gastro a few months ago which was so bad I passed out on the floor to the bathroom. That was scairy. I vowed I would stop smoking since the possibility of getting cancer and having chemo and the vomiting and nausea were too much for me.
I would SO prefer MS to chemo, cancer, treatments, surgery etc. I can deal with MS.
I haven't stopped smoking though...

Recalling my stint as an RN on Neuro, I was so inspired and moved by people who dealt with Guillian Barre syndrome. Hell, I can cope with this. (at the moment anyway )

and so can you...
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Old 05-03-2009, 07:11 AM #4
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Everyone deals with the hand they're dealt in their own way...in their own time. Yes, there are worse things than MS. And people with those "worse things" find their own way of coping. I try really hard not to compare my situation with others......each is unique in its own way.

Maybe try and look at Copaxone as a good thing....something positive you can do to slow the progression of your MS.

I'm sorry your sisters situation dominated so much of your life. It's time to concentrate on yourself now....and what you can do to make your life better and healthier.
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Old 05-03-2009, 07:56 AM #5
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We could be related! I feel exactly the same way.

My sister is still in the throws of drug addiction, and some pretty bizarre behavior. My mother will allow her to rip her off, steal, cheat, and treat her like garbage. This is NOT the sister I grew up with. I dont know this woman, I dont like this woman, and I have no intentions of allowing this woman back into my life to wreck it over and over again. I had to draw the line, and push her out of my circle. I feel ripped off! I see so many close families, and it breaks my heart all over again. its not fair!

but...I cant control her behavior. I cant make choices for her. she has to make the journey on her own. I was willing to walk with her for many miles, but she makes it too hard to stay with her. I will not allow myself to be abused anymore. I am standing right here when she is ready and able to come home. As much as it rips my heart out, that is the best I can offer. I raised her children for her so they were safe. I hid some of her child hood treasures so they were safe and not hocked. That is the best I can do for her until she can return home again.

I was again "ripped off" with MS. I survived breast cancer, and loads of other things, and I had done my time! I was in the clear! I was supposed to be able to get on with my life, and travel, and visit, and dance in the sun, and enjoy my hard won life. Too me MS meant a dragging leg, the constant need for rest, injections everyday. A life i didnt want nor would I chose for anyone

but...its here. My vision is more stable, the ON healed. I am working hard to not drag a leg, and have a wonderfully supportive husband. I am learning to look at the gift of everyday, and not the torture of having to endure another day. I didnt ask for MS, and I cant return this diagnosis, so I am going to try to do what I can with it. I will take my meds, I will do my exercises, and I will get up everyday, and put one foot in front of the other.

I know EXACTLY how you feel. I do hope you too can see the sunshine through the rain
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Old 05-03-2009, 08:09 AM #6
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No one gets out of this life untouched. But there are spurts of good. Really
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Old 05-03-2009, 09:42 AM #7
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I think all the injectibles are a little scary and intimidating at first. Then, it does get better. It gets to where it becomes a part of, at least with C, your daily routine.

I'm so sorry about your sister, and how she is to herself and to those who love her.

Remember Amy, you have all of us here on your side.
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Old 05-03-2009, 11:14 AM #8
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Just some heading your way. Totally understand what you're feeling, so vent away.

From a needle phobe, the copax injections became routine. Still ran from other needles, lol. but injecting oneself is easier after awhile. It was the wrapping my head around needing the injection that took a while for me.

Hang in there.
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