No advice, just and support. Do what your gut tells you. It's your life and no one else's.

I have used Rebif and I have used LDN.

Rebif - no side effects. It has an auto injector so even though I HATE shots, it was no big deal. I called a diabetic friend of mine, she recommended the stomach as it has the most fat. Of all the injection places, it was the best for me. It just took a bit of mental bravery to stick my soft belly!

It was just a hassle to inject at about the same time in the evening. There is a support system, the pharma WANTS your business.

why Rebif? The thought was that you get more medicine in smaller doses so there are less side effects. True? I really cannot answer that.

Effective? I don't know. I was dx'ed PPMS after a year so DMD's do not apply.

LDN - My MS doc had no problem. It is in such a low dose form, it cannot harm and if it does good, well all the more power to it. I would talk to him again.

For me, it had a negative effect but it appears it is only me. I lost my balance a lot. So much that I broke my shoulder. Since LDN was the only change I had made in medication, it just seemed smart to eliminate it. My balance is back to "normal."

So there are my thoughts. Sorry things are so stressful. Get a mint julip and sit on the porch!

Oh my Jappy! The remod is almost done. Which means we can come see ya! That will make you all better! Won't it? It would? Right? What you shaking your head for?

Well....you can make us some pies then.

Sorry you are feeling so crummy.

I guess I would give it a while longer. If you do choose Rebif, it is not so bad to be a freak'n pin cushion. (avoid if you can )

(Rebif for 7 years...C-shooter currently)

OH.....

Sorry to hear stuff's been wonky.

It is a personal choice for the DMD's. I was on Copax and now rebif due to IPIRs. For the two years on copax, I was "stable". Crossing fingers that the rebif will also be good to me. So far so good.

I too am not sure if they really help since this is a wacky disease to begin with, but I have something my other family members with MS didn't have. So that is why I'm on a treatment of some kind.

From a needle phobe, shots do become routine. The autoinjects help a lot when fine motor skills are blah. LOL, I can give myself one but still cringe and want to run from anyone else coming near me with a needle.

Know that no matter what you decide to do, we're hear for ya.

SLEPT LAST NIGHT::::::The script for neurontin and my other meds
finally had the pain at a level that I actually slept last night.

The only reason I did wake up was the usually nature calls that
come in the night UGH You finally get to sleep and the little bell goes
off "TIME TO MAKE THAT LITTLE TRIP"

I am going to wait to make a decision on the Rebif. Family saying
wait to everything with the house is done and just sit back and relax and
see how I feel after.

GOOD IDEA!!!!!

Thanks again for all of your support


Jappy

As you can see from my signature I went off it and blammo. I'm back on it now and as a fairly small man I opted for the 22mcg this time. The first go round with the 44's the sx's did bother me and this time depression did set in pretty good but a couple weeks of citalopram has straightened that out.

The other side effects are minimal unless I wake up in the middle of the night, then there's some chills/feverishness and muscle aches. 9.5 times out of 10 I sleep right through it and wake up feeling fine. It gets easier as time goes by without doubt. Good luck to ya!

Oh my poor Jappy bud~ Too many changes going on and way too much stress for you to deal with. You said you were going to ''take one day at a time'' and that's great advice, even if you gave it to yourself.

I hope your renovations are finished soon and you can feel better; last night's good sleep is a plus.

Take care my friend and I think I should get a pie before AMN! She's more into muffins. *wink~ if ya know what I mean!!*

DM I didn't want AMN to know that I am making that special pie
that I promised you awhile ago "Remember" our secret! :
Your pie will always be the first

Jappy

Jappy,
So sorry to hear of your increased MRI load and sxs...
I worry that if you don't go on DMDs that your lesion load will increase...

BUT...

You know in your gut what the right decision is for YOU...

Take care, take notes, and do some research...

We're here for ya...

Ahem....whadaboutme???