Ewwww, the visual on that still bothers me, kicker! What? You got hairballs? LDN won't help with that, lol!

Okay, back to the thread.

Thanks everyone for your thoughts on my problem.

You are right it is my decision, my body, that is why I haven't been on
any of the meds since they came out. I didn't want to.
The neuro I had in NJ was great he never tried to push me into the way
he was thinking. Always let me decide for myself after I checked everything
out about the treatment.

Even when I had a flare he would wait to see how things would go
before he would give me steriods. Most of the time my body claimed itself
without the drug.

I am going to give it much thought and have been talking with my
family, but I seem to be leaning towards not to do it.

I feel I have had the best med I could get, that is my Faith. It has
helped for 25 yrs. As a lot of you have said that STRESS is one of our
worst enemies.

Since the move I have been under a lot of that. But, before moving
had 3yrs. of my DH fighting cancer then passing away in 2006. Then after
that it was nothing but a lot of stress. The neuro gave me a script for
Elavil this time to see if that will help with the stress and another for the
nerve pain that I have been having.

I am going to take one day at a time. Thank You everyone for letting
me let everything out, because you are the only ones that know how I
really feel because of how we share something so horrible.

CINDY---when I get my new kitchen done, I will start experimenting
on some new pies.

Jappy

No advice, just and support. Do what your gut tells you. It's your life and no one else's.

I have used Rebif and I have used LDN.

Rebif - no side effects. It has an auto injector so even though I HATE shots, it was no big deal. I called a diabetic friend of mine, she recommended the stomach as it has the most fat. Of all the injection places, it was the best for me. It just took a bit of mental bravery to stick my soft belly!

It was just a hassle to inject at about the same time in the evening. There is a support system, the pharma WANTS your business.

why Rebif? The thought was that you get more medicine in smaller doses so there are less side effects. True? I really cannot answer that.

Effective? I don't know. I was dx'ed PPMS after a year so DMD's do not apply.

LDN - My MS doc had no problem. It is in such a low dose form, it cannot harm and if it does good, well all the more power to it. I would talk to him again.

For me, it had a negative effect but it appears it is only me. I lost my balance a lot. So much that I broke my shoulder. Since LDN was the only change I had made in medication, it just seemed smart to eliminate it. My balance is back to "normal."

So there are my thoughts. Sorry things are so stressful. Get a mint julip and sit on the porch!

Oh my Jappy! The remod is almost done. Which means we can come see ya! That will make you all better! Won't it? It would? Right? What you shaking your head for?

Well....you can make us some pies then.

Sorry you are feeling so crummy.

I guess I would give it a while longer. If you do choose Rebif, it is not so bad to be a freak'n pin cushion. (avoid if you can )

(Rebif for 7 years...C-shooter currently)

OH.....

Sorry to hear stuff's been wonky.

It is a personal choice for the DMD's. I was on Copax and now rebif due to IPIRs. For the two years on copax, I was "stable". Crossing fingers that the rebif will also be good to me. So far so good.

I too am not sure if they really help since this is a wacky disease to begin with, but I have something my other family members with MS didn't have. So that is why I'm on a treatment of some kind.

From a needle phobe, shots do become routine. The autoinjects help a lot when fine motor skills are blah. LOL, I can give myself one but still cringe and want to run from anyone else coming near me with a needle.

Know that no matter what you decide to do, we're hear for ya.

SLEPT LAST NIGHT::::::The script for neurontin and my other meds
finally had the pain at a level that I actually slept last night.

The only reason I did wake up was the usually nature calls that
come in the night UGH You finally get to sleep and the little bell goes
off "TIME TO MAKE THAT LITTLE TRIP"

I am going to wait to make a decision on the Rebif. Family saying
wait to everything with the house is done and just sit back and relax and
see how I feel after.

GOOD IDEA!!!!!

Thanks again for all of your support


Jappy