Home Menu

Site Navigation



NeuroTalk Support Groups > > >

HiCy redose (in progress)

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 05-10-2009, 03:43 PM #1
RedPenguins's Avatar
RedPenguins RedPenguins is offline
Member
  
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
RedPenguins RedPenguins is offline
Member
RedPenguins's Avatar
 
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
Default HiCy redose (in progress)
Hi Everyone,

Just wanted to give an update.

I just finished my fourth (and final) dose of the chemo today. I will be released from the hospital later tonight. Then I will stay in Baltimore for another 2-3 weeks while my immune system crashes and then reboots.

The chemo once again went down without a hitch. I didn't get sick at all. I'm not sure if I am pleased or disappointed. I know, that sounds weird - but part of me just thought I'd end up sick this time. The doctors have tried to assure me that the efficacy of the cytoxan is not related to the amount of sick one gets and I knew that...but still! I also had a convo with the oncologist who signed the consents with me - we discussed why it is they use "ideal" body weight versus actual body weight of the patient when determining the amount of the chemo used. It was interesting. He also believed that the dose I was using should be well enough to help me. So much for getting buckets of the stuff! (See, I'm a large person, so we worried that I hadn't gotten enough of the chemo. tee hee.)

Yesterday they ran an iron transfusion and I seemed to have slight side effects from it (chest pain), but nothing too major. They ran a few tests and I was fine.

I've met two others who are here having HiCy for MS. Well, I met one person and then I met the mother of the other person.

Other than that....it seems that I'm having a mild reaction to the tape from the bandage around the hickman line. Apparently my skin is super sensitive.

~Keri
RedPenguins is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
azoyizes (05-11-2009), barb02 (05-10-2009), Dejibo (05-10-2009), Desinie (05-10-2009), ewizabeth (05-11-2009), Riverwild (05-10-2009), SallyC (05-10-2009)
Old 05-10-2009, 05:15 PM #2
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
  
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default
Thank you for the update. I have been saying prayers and sending hugs every day for you. I hope you get to go home soon.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RedPenguins (05-10-2009)
Old 05-10-2009, 05:40 PM #3
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
  
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default
Glad to hear everything is going well, Keri!

Also glad to hear you didn't get sick, even if you wish you did...

Keep us updated!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RedPenguins (05-10-2009)
Old 05-10-2009, 05:45 PM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
You're a brave lady, Keri. I hope this time works for you. You're in my thoughts and prayers.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RedPenguins (05-10-2009)
Old 05-10-2009, 05:56 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
You are a real trooper for going through this again. I will be praying and hoping that, this time, it works and it lasts.

Thinking about you..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RedPenguins (05-10-2009)
Old 05-10-2009, 11:24 PM #6
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
  
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default
Hope things go as smoothly for you as last time, Keri, and it does what it should.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 05-10-2009, 11:27 PM #7
Desinie Desinie is offline
Member
  
Join Date: Jan 2008
Location: Pennsylvania
Posts: 500
15 yr Member
Desinie Desinie is offline
Member
 
Join Date: Jan 2008
Location: Pennsylvania
Posts: 500
15 yr Member
Default
I've been thinking of you and praying for you, Keri. Thanks for checking in! May this be your ticket into remission.
Desinie is offline   Reply With QuoteReply With Quote
Old 05-11-2009, 06:17 AM #8
azoyizes's Avatar
azoyizes azoyizes is offline
Magnate
  
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
15 yr Member
azoyizes azoyizes is offline
Magnate
azoyizes's Avatar
 
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
15 yr Member
Default
I've been thinking of you Keri, and wondering how things were going. Glad you got through the treatment so "easily", and I hope with all my heart that it works this time.

I hope everything goes okay during the crash and reboot phase.
__________________
Mair


.
azoyizes is offline   Reply With QuoteReply With Quote
Old 05-11-2009, 08:17 AM #9
ali12's Avatar
ali12 ali12 is offline
Magnate
  
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart
So glad to hear that everything went well for you, Keri and that you didn't have any nasty side effects!!

I hope and pray that this helps you and please know that you are in my thoughts!!
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Old 05-11-2009, 08:39 AM #10
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
  
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default
Good luck Keri. I hope you'll get good results this time. Sending up another prayer for you...
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
Reply
Page 1 of 2 1 2

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
HiCy Redose... RedPenguins Multiple Sclerosis 11 04-25-2009 10:29 PM
I will not be doing HiCy sheena Multiple Sclerosis 10 01-26-2009 11:38 AM
Sheena is going for HiCy sheena Multiple Sclerosis 20 09-08-2008 12:24 PM
My HiCy update! RedPenguins Multiple Sclerosis 35 08-09-2008 08:49 AM
What HiCy is and why it's different chrishadms Multiple Sclerosis 11 07-06-2008 01:12 PM


All times are GMT -5. The time now is 02:04 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home