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Old 05-10-2009, 03:43 PM #1
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RedPenguins RedPenguins is offline
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RedPenguins RedPenguins is offline
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Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
Default HiCy redose (in progress)

Hi Everyone,

Just wanted to give an update.

I just finished my fourth (and final) dose of the chemo today. I will be released from the hospital later tonight. Then I will stay in Baltimore for another 2-3 weeks while my immune system crashes and then reboots.

The chemo once again went down without a hitch. I didn't get sick at all. I'm not sure if I am pleased or disappointed. I know, that sounds weird - but part of me just thought I'd end up sick this time. The doctors have tried to assure me that the efficacy of the cytoxan is not related to the amount of sick one gets and I knew that...but still! I also had a convo with the oncologist who signed the consents with me - we discussed why it is they use "ideal" body weight versus actual body weight of the patient when determining the amount of the chemo used. It was interesting. He also believed that the dose I was using should be well enough to help me. So much for getting buckets of the stuff! (See, I'm a large person, so we worried that I hadn't gotten enough of the chemo. tee hee.)

Yesterday they ran an iron transfusion and I seemed to have slight side effects from it (chest pain), but nothing too major. They ran a few tests and I was fine.

I've met two others who are here having HiCy for MS. Well, I met one person and then I met the mother of the other person.

Other than that....it seems that I'm having a mild reaction to the tape from the bandage around the hickman line. Apparently my skin is super sensitive.

~Keri
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