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Old 05-30-2009, 12:58 PM #21
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Quote:
Originally Posted by Friend2U View Post
I don't really have anyone in my 'real world' to talk to about it, or at least who is experienced it. So I appreciate getting to talk to the cyber world!!!!
Thanks.

Me, too, Friend2U. Even my kids (who live with me) don't have a clue. I can't really blame them......but then again, I can, because everyone at my house has the ability to access the Internet and look things up. Apparently there's time to look up YouTube videos and download ITunes.....but no time to read up on MS. My new reply to any questions about MS......"Google it".
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Old 05-30-2009, 02:22 PM #22
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Default Progression??

I describe recouping from a flare like this:

Like a bouncing ball that does not come up as high as it once was........

Otherwise; I do not come completely back to where I was before.
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Old 05-31-2009, 03:48 AM #23
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Default Cindy,

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Originally Posted by AfterMyNap View Post
Friend, the most fun part of this disease is all the unanswered questions. Like Sal said, there is no designated or natural path for every case. That means that you're special.

I strongly recommend that you at least call this in to your neuro, tracking your symptoms is very important to the overall treatment your neuro can offer you.

Having had both neuropathic pain and profound numbness, I can tell you for sure, the pain is no picnic and I hope it doesn't come to that for you.

Like Cherie pointed out, many MS patients have relapses that put symptoms into action on a temporary basis. Sometimes, after a relapse, those symptoms remain, in smaller proportions.

When/if the SP factor appears to be the case, the relapses cease for the most part and a slower, steadier decline takes over. Not all RR patients become SP patients.

The buzzing sensation in your neck is probably L'hermittes and it is pronounced, luh-herm-i-tease by the three doctors with whom I've discussed it.

Thanks for the advice! I do see that I really need to tell the neuro everything and not try to determine for him what he needs to know!

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Old 05-31-2009, 03:52 AM #24
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Default Kitty,

Quote:
Originally Posted by Kitty View Post
Me, too, Friend2U. Even my kids (who live with me) don't have a clue. I can't really blame them......but then again, I can, because everyone at my house has the ability to access the Internet and look things up. Apparently there's time to look up YouTube videos and download ITunes.....but no time to read up on MS. My new reply to any questions about MS......"Google it".

So True! So True!
...or as my kids say...."True that!"
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Old 05-31-2009, 03:57 AM #25
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Default Karilann,

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Originally Posted by karilann View Post
I describe recouping from a flare like this:

Like a bouncing ball that does not come up as high as it once was........

Otherwise; I do not come completely back to where I was before.
That's a good way to describe it. That bouncing ball of mine seems to be deflating a little every time it hits the floor. Bummer!
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Old 06-03-2009, 10:33 AM #26
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I found this article.......it might be helpful:

http://ms.about.com/od/signssymptoms/a/numbness.htm
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Old 06-03-2009, 06:08 PM #27
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I skipped the tingling step, went right to pain in my head, and THEN the tingling began.

Next thing you know I'll be putting my clothing on backwards in the morning.. oh wait, I've been guilty of that already!
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Old 06-05-2009, 01:08 AM #28
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Quote:
Originally Posted by Kitty View Post
I found this article.......it might be helpful:

http://ms.about.com/od/signssymptoms/a/numbness.htm
Thank you Kitty. This was very helpful!
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Old 06-05-2009, 08:06 AM #29
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I agree, that was a great article. My numbness has been from fingertips to my head, and constant for 2 years now. The worse sx is the severe itching but that is relieved with meds.
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