Just wondering? I legs and feet have just gradually changed from tingling to more of a numbness. Now, here lately, they just seem to hurt and ache. I'm wondering, is the the natural progression? Is more increase in pain what I have to look forward to???

Not trying to complain, things could be SO much worse. Just wondering?
Thanks!

There is nothing natural about it, Friend, but yes, if you start out as RRMS, that is the usually progression to SPMS. For some lucky devils, that progression can slow down, with the right med???

Thank you for telling me that. I really wasn't sure. It just seems like some things are just gradually getting worse.

The input I get here is so very helpful... to answer those questions that arise or just pop into my head.

Thanks

I'm not ready to believe that my pain is a progression to SPMS.
When my numbness subsides and is replaced by pain, I think mine is nerve regeneration or overworked muscle or fatigue.
Never occured to me that it was the path to SP!
No no no. Just call me Miss Denial if you like but not SP.

Hope you're going ok.

Mostly I try not to think about it. But when weird things are constantly going on in your body, it's hard not to have a million concerns and questions.

Last night I couldn't sleep because I kept feeling my legs were floating above the bed. And every time I'd almost fade off to sleep, I'd have that rush going from my head to my toes.

Thanks Pud's Friend for sharing.

I dont understand.

Are you saying that if you've got an appendage that's tingling, and it starts hurting instead of tingling...that, that means you're progressing from RRMS to SPMS??? That doesnt quite sound right to me. At least that's how I interpreted SallyC's response.

I would think that if your numb area is tingling and starting to have pain where there was once numbness, then that would be the nerves trying to regenerate after an exacerbation/flare, and that maybe after awhile the pain might lessen and you'll end up with (hopefully) normal sensation again.

I think I'd rather have pain than numbness. At least when it hurts, you can tell that it's there, when you're numb, you can never quite tell where the numb appendages are, and numbness is a hell of a lot more disturbing of a sensation than pain is to me.

I am a little confused. I guess I'll just wait and see what happens. Like I have any say in it?! I'm not in a lot of pain. Tonight I feel grateful for not being any worse than I am right now.

But I think my original question or concern wasn't about the labels rrms/spms. But just wondering if it was typical for tingling to eventually turn to pain, or if they were two separate things.

Just ignore me everybody if it doesn't even make sense~~~ Cause I don't probably need to dwell too much on the little things.

Thanks

It wasnt your post that had me confused, I thought it was a good question. I just was wondering about the answer you were given.

When I have had a spinal lesion attack, it has started with numbness/tingling in my feet, and by the time it gets to my knees, the burning, aching, swollen feeling and "shocks" get in on the party. It goes up my body like that, until it stops where it wants to . . . and the rest of the sensations do too.

When I recover, it occurs generally in the same order that it came on, bit by bit.

SPMS implies that this is not a relapse (or it is one of your last relapses, as relapses eventually stop with SPMS). I don't think there is any indication you are in this category, because you are still relapsing. If you are ultimately left with many of these ongoing symptoms, ii.e. you don't recover much from this attack, then you might start contemplating that you are advancing to SPMS. It is premature to think that way now though.

If this attack runs it's full course, you may find that the numbness and other sensations continue to climb, to the level where the spinal lesion must be. IF this happens, these attacks seem to escalate over 4 - 6 weeks, and most of the recovery occurs over the following 4 - 6 weeks.

I hope this stays in your feet/legs though ... which can happen depending on where the lesion is.

Keep us updated, won't you?

Cherie

Boy, you really have to be careful with the way you say things here...My Bad.

Not everyone automatically progresses from RRMS to SPMS. I believe I said that is the usual way it happens. Noone's MS is the same as another's.

Usually when your relapses stop and you have lasting SX with more spasticity(pain), you have, more than likely, progressed to SPMS. That is the way it happened for me and I believe that is the way it happens for most..not all, RRMSers.

So Sorry, Friend2U, if I didn't make myself clear.