BLOODY HELL! I was hoping I would come here to read that the equipment was malfunctioning and that yesterday's results were false positives. I don't suppose that she's ever had any problems with Biliary Atresia since you've said she's always been healthy?

Interesting choice with the choice of Heparin. I would think they would want to prevent more clots from forming with something akin to Lovenox rather than Heparin which has the potential for the clots to start dissolving within her liver and thus start internal bleeding within the hepatic region.

I can understand her not wanting you to ask further questions or see her chart. When I was diagnosed, my Father in Law who is a Pulmonologist at the hospital where I was admitted wanted to read my chart and discuss my case with my treating physicians. My husband vehemently objected and told him he wanted him to be "just a family member". I'm glad he did. He's been a great support to us. I know the outcome wouldn't have changed, and it was good for us to see him in "another light" other than being a physician.

I continue to wish you all well.

Chris

So sorry to hear about your daughter, Cherie. I'd much rather personally suffer pain or fear, then to see my kids go through it.

It's odd that they don't seem to be trying to figure out the cause. I guess you've done some research yourself; any ideas yet?

Prayers coming your way.

Cherie

My goodness! I am so sorry your family is going through this. My thoughts and prayers are with you.

Did your daughter end up going home? I'm hoping she can be monitored or something so the doctors can be aware of what's going on with her. You must be so worried. Please keep us updated.
Jean

I am so sorry the way things are panning out. It is so tough being a nurse and have a sick adult child that makes their own decisions. My Mom was in the hospital this week on the same unit that I retired from. Of course there were very few nurses still there. But the ones that were there let me read her chart. I feel bad now that I didn't tell my Mom I was doing it.

Cherie,

I'm sorry to hear about your daughter, and I will be thinking positive thoughts for her and your whole family.

I had a blink of a thought while I was reading through your post... you mention she is a vegaterian, and you mention the docs think it could be an infection ---- did she come into contact with any of the e-coli spinach by any chance? I did a quick google on e-coli and liver and a lot of stuff popped up.

Of course, my blink of a thought is biased by the fact that as I was reading your posts, the news was discussing the spinich/e-coli problem, but I figured I would mention it anyway just in case my blink of a thought is actually helpful.

Many positive thoughts are being thought for your daughter.

Liz

Cherie,

I'm so sorry to hear about your daughter's health scare. I hope it turns out to be something benign. You and your family will be in my prayers.

We are having a bit of a scare with our son too. We should know more on Monday what is going on with him. He has signs of Crohn's (which runs in the family).

Cherie -- I'm so sorry to read about your daughter. As if you don't have enough stress in your life! My prayers will be with her and of course you too as you search for answers and solutions.

My three adult children live just far enough away that I don't 'observe' their daily lives. Really believe it's a good thing since sometimes it's difficult for us Moms to let go no matter what the age!!

Take care......Judy...aka msproperlady

Liz,
The E. Coli scare was the first thing we all thought of but it causes diarrhea and dehydration (neither of which she had). And if it hits weak , at risk individuals, it attacks and shuts down kidney function...not liver. I was so hoping that might be the cause because it's readily treatable.

They saw what appears to be a congenital malformation in the circulation to the liver on yesterday morning's ultrasound. So....I could have had a baby that needed a liver transplant if it were more pronounced. It just remains to be seen whether or not this is serious enough that we have that road to walk in the future. Many of the tests that were done will not give us answers till late next week.

Meanwhile, I have a very slow week with the exception of Wednesday when I have my dexa scan then have to go to Boston for a meeting so I can be on tap for child care.

Thank you all...from the bottom of my heart....for the prayers and emotional and verbal support you are sending our way. It is greatly appreciated. We don't feel so alone or helpless with this kind of ourpouring of concern.