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05-29-2009, 01:44 AM
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Member
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Hi everyone,
Just wanted to let you know that I am now home after my second course of treatment with HiCy. The treatment, once again, went down without a hitch. I did not get sick at all during the 4 days of chemo. My white blood counts bottomed out, as expected and wanted.... and then they skyrocketed back up and I was officially "rebooted".... Now time will tell how much good it's going to do for me. I had some incredibly intense bone/body pain during the reboot part - from the growth factor that they gave me. But after one night of incredible pain, my white counts jumped from 700 to over 6,000! My bone marrow was working overtime big time! I was gone for a total of 3 weeks and 2 days. The holiday held me up a few days....I was ready to go and done on Friday but they couldn't remove the catheter until Tuesday b/c of the holiday....so I had to spend several "Extra" days in Baltimore. So other than the bone pain incident....the only other reaction to the chemo is that I'm once again bald. Bald, bald, bald.  My energy level is still not the best but that's due to the chemo. I haven't felt the MS fatigue like I had before the treatment....but again, time will tell....now I just have to wait and see if I improve as the days go by. I will start prophylactic treatment with Copaxone in a few weeks (for 9-12months) and a regimen of high vitamin D supplements. Anyhow, just wanted to update you all....and to say that I still stand behind the HiCy/Revimmune treatment 100%. And yes, my insurance covered the second treatment, too! ~Keri |
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| "Thanks for this!" says: | barb02 (05-29-2009), Dejibo (05-29-2009), Desinie (05-29-2009), dmplaura (05-29-2009), ewizabeth (05-29-2009), Grammie 2 3 (05-29-2009), Ivy2 (05-29-2009), Jodylee (05-29-2009), NurseNancy (05-30-2009), Riverwild (05-29-2009), SallyC (05-29-2009), Twinkletoes (05-29-2009) |
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05-29-2009, 04:52 AM
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Senior Member
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Hi ya, Keri, I really hope it works this time
 . I'll be thinking about you  .I'm sorry about your hair . Thanks for keeping us in the loop!
__________________
Multiple Sclerosis-Dx May 2007 . |
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05-29-2009, 06:31 AM
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Member
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Been thinking of you and praying for you,Keri!
Glad to hear your update
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05-29-2009, 07:35 AM
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Elder
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you continue to be on my prayer list. Way to go!
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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05-29-2009, 08:09 AM
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Magnate
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Keri,
Glad to hear everything went well! Sorry for the hair part! It will come back again! Buff it up and wear it proudly!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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05-29-2009, 10:47 AM
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Grand Magnate
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Glad to hear that is behind you, and you are on your way to improved health.
Have you talked to them about how others are doing, Keri? Has anyone else come back for another treatment? Do you know how Chris is doing; is he still doing well? I hope this is your ticket. Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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05-29-2009, 10:53 AM
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In Remembrance
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Yaaaa, Keri. I'm glad you're through the hard part and are on your way to wellness....I hope, I hope, I hope..
I still don't have an understanding of the Copaxone part of it? Unless Teva is footing the bill..  Good wishes and love..
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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