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#1 | |||
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Senior Member
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Tomorrow the nurse is supposed to come over to teach me
how to give myself the Rebif shot. I am now starting to think twice about taking it. I have been feeling better or think I am. ![]() ![]() I am really so messed up with what to do. Everything has been delivered to the house. One minute I feel I need some more time to decide what to do the next I am going for it. ![]() My family wishes that I wait for one month and see how I feel after that. Then I start thinking the ms my not agree with me and then it might. So mixed up ![]() ![]() Wish there was some way that we could predict the future ![]() ![]() When tomorrow comes I know I am going to have to make some kind of decision. Thanks for listening to my mixed up mind !!!! Jappy ![]() |
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"Thanks for this!" says: | SandyC (06-01-2009), Twinkletoes (05-31-2009) |
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#2 | |||
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In Remembrance
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Go ahead and try it, Jappy. It's not as though you can't stop it at any time, if it gets too uncomfortable or it's just not helping you.
Good luck.. ![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Dejibo (06-01-2009), ewizabeth (05-31-2009), Jappy (06-01-2009), SandyC (06-01-2009), Twinkletoes (05-31-2009) |
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#3 | |||
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Wise Elder
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Jappy, honey, you know perfectly well that how you feel today or tomorrow has nothing to do with the outcome of a long-term MS treatment plan.
If it can make you feel carpy less often, and possibly stave off disability, why not try it? Like Sal said, it's not a life sentence, if you can't handle it, just quit it!
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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"Thanks for this!" says: | Dejibo (06-01-2009), ewizabeth (05-31-2009), Jappy (06-01-2009), SandyC (06-01-2009), Twinkletoes (05-31-2009) |
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#4 | |||
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Senior Member
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There can be a lot of anxiety about taking a shot. I know because I felt that way. The first doses are VERY mild. All you have to do is take it, then get to bed and watch tv or read a book. After the allotted time, go to sleep.
The fear of the unknown is so much worse than the medication. |
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#5 | |||
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Elder
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aww sweetie! its scary to think about poking yourself with a needle. Esp stuff that may make you feel not well, while you adjust to it.
The thing about MS disease modifying drugs is that we dont take them for how we feel today. We take them to help protect us so we can keep feeling good tomorrow. They are designed to help reduce the amount of relapses we have, and if we do have relapses to help make them less severe, do less damage, and hopefully skip us by some major damage that leaves us dragging a leg, or having trouble swallowing. So, please dont think of taking this drug for your "today" sx. Please consider taking this drug to "prevent" tomorrows sx. We are all cheerleading you! ![]()
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#6 | |||
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Grand Magnate
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Quote:
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#7 | |||
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Wise Elder
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This is normal Jappy. Go ahead and give it a whirl. If you don't like it you can stop. Give it some time before stopping though because many symptoms decrease the longer you take it.
Aren't you in Kentucky? We are in Shelbyville visiting friends and the humidity and heat are brutal on Jim. Stay in the cool air when you start just to familiarize yourself with the side effects. You don't want to confuse the heat symptoms with the med symptoms. ![]()
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#8 | |||
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Senior Member
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Thanks everyone for your input on this.
Like you say I won't know if I don't try. I have to realize the future is what is important. I feel better today but what is tomorrow going to be. Reading your advice has helped in making a decision. I am going to try it. I was already for today and get a call the nurse cannot make it until tomorrow ![]() Well I am not going to change my mind. I really think it is the thought of the needle. I will only have to do it 3 times a week. That's enough. ![]() The Rebif has an injector so it might be easier then me having to push the needle in. (I hope) I am not afraid when someone else gives me a shot it's the thought of doing it myself. Thanks Again Everyone I knew you would be there for me. ![]() Jappy ![]() |
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#9 | |||
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Wise Elder
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Did you do it yet?
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | Jappy (06-06-2009) |
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