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#1 | |||
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Magnate
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First time I did 5 days of IVSM and a month taper after on prednisone.
Second time (2 months later!) I did 3 days IVSM and no taper. I've not had to have IVSM or prednisone since. That was over a year ago. I hated the prednisone. The IVSM is no walk in the park either, but the prednisone was dreadful (side effects).
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#2 | |||
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Legendary
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I also hated the oral cortisone because of all the side effects, but I really didn't suffer any at all when I had it IV. From what I read here about how others suffer, it appears that I came off lightly.
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Eastern Australian Daylight Savings Time and my temperature . |
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#3 | |||
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Senior Member
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Biogirl7,
I don't do an oral taper after the IVSM. My MS Neuro says you don't need them, you've just had enough high-dose steroids. You're body will taper down itself, she said. Also she won't give me steroids again, of any kind, for at least until 6 more months have passed. She says the bodies own cortisol will kick in, this way you won't get Cushing's Syndrome symptoms from taking steroids too long. She gives this time for the current dose a chance to work. Sometimes it works right away, other times it gradually heals you. We are all different. It takes the inflammation away from around the lesions. This is why the MRI may not show any more enhancement. It is the fluid around the lesion that enhances, because it came to aid the lesionit (like an injured knee or ankle will swell with fluid). Calming and eliminating the inflammation, helps the relapse to heal and go away faster. Less damage in done to the lesion. I hope your tests go well. You shouldn't have a problem without the taper. You will sleep better and be test ready, without more steroids.
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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#4 | |||
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Senior Member
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I don't do a taper anymore, either. I did once and it seemed to prolong the side effects. I would rather just crash for a day and get on with it.
Be sure you are well hydrated. Also be sure to get lots of potassium because the IVSM kind of depletes you. An MS nurse clued me into that and it has helped so much. I don't like bananas so I did some research and found canteloupe and apricots to be very high in potassium. I also found V8 with Calcium (it has to be this version to get the most potassium) to be way high in potassium.
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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#5 | |||
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Magnate
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I just finished a 3-day course of IV steroids today. My neuro doesn't give me a prednisone taper, and I think it's a lot better this way. I do try to drink a lot of water and seltzer to stay hydrated.
But, like other people have pointed out, everyone is different. Best of luck with your steroids!
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Mair . |
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#6 | |||
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Elder
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I just finished my last day of IV roids today too. I don't take step downs either. I think it a lot easier, than dealing with the side effects of all those prednisone pills. The day after my last nfusion is always the hardest. Feel like I got run over by a mac track. But then it is over and the step downs just used to prolong the agony. Hope you do well!!
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