I can totally relate, LA. It's a defeated feeling. I'm so sorry you're having to go through this.

Have you thought about LDN? It's just a pill you take at bedtime. I did the DMD's and couldn't handle them. LDN was my last resort......and I'm so thankful I tried it. Just wish I had done it sooner!

It is an awful feeling. I am finally MAD about the situation and something has to change.
I need to do a lot of reading about LDN before I go to the new neuro on Monday.

LA

dear LA,

i havn't had to make that decision yet but i certainly understand.
it's very hard to not feel well day after day and have the shots make it worse.

i've been on copaxone from dx. i had a hx of depression and we didn't want to make it worse with the interferons. you have to do a small shot SQ everyday but it doesn't cause flu like sx's. in the beginning i had unpleasant site reactions but with practice and time they have lessened quite a bit.

whatever you decide will be right for you. and take your time.
please let us know about your appt.

oooh oooh !!! ME ME ME!!!

I have talked myself into each daily shot for a long time now. I am sick of it. Why am I sticking myself every single day? Why? I have lumps, bumps, I am tired, I am overwhelmed, and I am quickly reaching the point of saying enough.

I go in July for my MRI and follow up appointments. I may be laying down my needles. lets see if I get a second wind by then.

I know EXACTLY how you feel.

Yep, LA, I quit Copaxone over a year ago (took daily shots for 9.5 months). I just got tired of it and wasn't convinced it was helping. I've been taking LDN for 10.5 months now. I like it much better.

Good luck to you with your new Neuro!

IMHO you never give up and admit defeat - that's just too much.

I've had long times of doing nothing (PPMS responds to little), Gave up Rebif after 2 years, it was doing nothing, swear it made me feel worse than MS- gave me more MS like symptoms, non - ambulatory so they wouldn't let me in Fingolimod clinical trial, but tried. Trying 4-AP soon (non-FDA approved but my neurologist will prescribe -- must be done by a compounding pharmacy - Will try LDN next if this doesn't help - not a great success with PPMSers. If Neuro won't prescribe, bet nice PCP will. Not going out of country, but if stem cell becomes available will try. If nothing is left, will stop until next thing comes. MRIs are bad for me (hate them, I spazz and negate process), not much help (duh, I know I have lesions, loss of walking shows all the progression I need to know) so won't do anymore. But while I make decisions for me, take breaks, I will never give up. Me and Don Quixote (it was a book and musical!!) jousting with windmills. "To dream the impossible dream" the song goes. Yes.
0)

Not giving up....just done sticking a needle in my muscle. I need other options.

LA

I stopped sticking needles in me. Wasn't helping. So on to the next thing I believe in and want to try. after this it could means days or years of a break - depends.