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Old 06-26-2009, 10:49 AM #1
poetic license poetic license is offline
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Join Date: Apr 2009
Posts: 39
15 yr Member
poetic license poetic license is offline
Junior Member
 
Join Date: Apr 2009
Posts: 39
15 yr Member
Default just got my diagnosis

...just as the disease started its course.

I'm a 25 year old mom of two (a toddler and a babe) and I'm currently doing some part time work from home. After the birth of my daughter (#2) I had patches of numbness in the legs that came and went, plus a short bout of tingling in the hands that came and went. What sent me to the neuro was when one of my feet turned numb and stayed that way for weeks.

They worked me up for peripheral neuropathy, with everything "okay" until the second attack, which was only two months after the first ended and left me with severe leg weakness, numbness up the whole leg into the behind, and ataxia. I had lost all deep tendon reflexes from both knees down. They suspected either MS or CIDP and told me that my symptoms were atypical of MS but since I was a young female needed to rule it out.

So...after MRIs, SSEP and and LP all within a few weeks, I got my diagnosis. I've been lurking around here since I got my MRI which showed "possible" (their words) demyelinating lesions in the c-spine and one in the brain. I figured I had MS from that point on, even though I was not given a diagnosis until after the LP showed oligoclonal bands. The doc thinks we caught the first of the attacks, that I did not have MS prior to this point.

My first step is to figure things out, med wise... I know I want to be on LDN as soon as possible, with three attacks in 6 months I want to start that asap. I have to wait until Jul.8 to see another neuro who is known for being aware of it and who rx's it. I still haven't decided on the DMDs, I'm leaning towards adding in copaxone once I am on LDN. Also trying to make a decision as to whether to try for another child, since that will obviously affect when i start the copaxone.

eh, enough about me, I hope to start chatting with you all soon. To be honest after lurking here MS seemed a whole lot less scary and I was more accepting of the diagnosis when it finally came.
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