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#1 | ||
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Junior Member
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...just as the disease started its course.
I'm a 25 year old mom of two (a toddler and a babe) and I'm currently doing some part time work from home. After the birth of my daughter (#2) I had patches of numbness in the legs that came and went, plus a short bout of tingling in the hands that came and went. What sent me to the neuro was when one of my feet turned numb and stayed that way for weeks. They worked me up for peripheral neuropathy, with everything "okay" until the second attack, which was only two months after the first ended and left me with severe leg weakness, numbness up the whole leg into the behind, and ataxia. I had lost all deep tendon reflexes from both knees down. They suspected either MS or CIDP and told me that my symptoms were atypical of MS but since I was a young female needed to rule it out. So...after MRIs, SSEP and and LP all within a few weeks, I got my diagnosis. I've been lurking around here since I got my MRI which showed "possible" (their words) demyelinating lesions in the c-spine and one in the brain. I figured I had MS from that point on, even though I was not given a diagnosis until after the LP showed oligoclonal bands. The doc thinks we caught the first of the attacks, that I did not have MS prior to this point. My first step is to figure things out, med wise... I know I want to be on LDN as soon as possible, with three attacks in 6 months I want to start that asap. I have to wait until Jul.8 to see another neuro who is known for being aware of it and who rx's it. I still haven't decided on the DMDs, I'm leaning towards adding in copaxone once I am on LDN. Also trying to make a decision as to whether to try for another child, since that will obviously affect when i start the copaxone. eh, enough about me, I hope to start chatting with you all soon. To be honest after lurking here MS seemed a whole lot less scary and I was more accepting of the diagnosis when it finally came. |
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#2 | |||
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In Remembrance
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Again, Welcome PL.....Sheesh, hate it when a young Parent get this lousy disease..
![]() ![]() Do you have a supportive Hubby/Family. That would help a lot. So sorry for your DX, but glad you found us. We will be here for you.. Welcome to the Family.. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Kitty (06-26-2009) |
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#3 | |||
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Grand Magnate
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Welcome! Sorry to hear about the DX, but glad you found us.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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#4 | |||
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Wisest Elder Ever
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Hi PL and welcome to NeuroTalk. I'm so sorry you got the MS diagnosis.....you're so young. But the good thing is you caught it after the first attack and can get right on a good medication soon. I'm on LDN and love it. Love it, love it, love it.
I hope you'll continue to come here and post. This is a great board and there are lots of very friendly and supportive people here. I don't know if you've visited the Stumble Inn yet or not but that's where we go to get away from MS and just kick back and have fun. ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | SallyC (06-26-2009) |
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#5 | |||
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Elder
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Quote:
He only said that he'd think about it, and he has to ask my neuro about it first. Argh! My neuro told me that he doesnt think that LDN does anything, and then went on to tell me that he doesnt think the injectible that he Rx-ed me doesnt do anything either! (great...nice vote of confidence there) So, now I want to quit the Copaxone and just do LDN, since the LDN doesnt require that I stab myself daily to take it. If the C is not going to do anything for me, why ruin my skin taking it?
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~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~ ~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~ |
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#6 | |||
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Magnate
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![]() Welcome to the place you never thought you'd be! It's good to hear that your neuro thinks that you were diagnosed early. You can purportedly reduce relapses and slow disability with meds now, so finding this early can only be in your favor. Come on in, set a spell, jump in when you feel comfortable and ask whatever questions you have, someone always answers! ![]()
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | Kitty (06-26-2009) |
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#7 | |||
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Elder
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Welcome!
Sorry you needed to be here, but happy we can be here for you. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#8 | |||
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Magnate
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Welcome, nice to meet you, but sorry for your diagnosis. I hope things look up for you moving ahead and you can work with your doctors to your satisfaction.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#9 | ||
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Junior Member
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Thanks everyone for the warm welcome! I have tons of things I'd love to ask others about and discuss, but we'll see how much I end up getting around to
![]() Heh, you can say that again! ![]() ![]() Yep, this is one thing I am truly grateful for. I also told my mother in law, when I told her about my dx-- "Hey, if I'm gonna have a horrible disease, at least it's one that gets tons of research attention!" |
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#10 | |||
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Member
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Hi PL, Welcome to Neurotalk although I wish you didn't have to be here. But glad to know the doctor caught it early. That is some good news. This forum was a life support for me in the beginning months when I was first diagnosed. Lots of great people here. Hope to see you around!
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On Tysabri and love it. . |
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