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Old 06-28-2009, 12:35 PM #1
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My Family did the same thing when I was on Avonex (said nooooo)

DD, since she has been DXed with MS, has refused all DMDs, because she saw what Avonex did to me. She told her Neuro...Nooooooooo, and is also on LDN. She no longer sees a Neuro and neither do I..
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Old 06-28-2009, 04:42 PM #2
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Quote:
Originally Posted by SallyC View Post
My Family did the same thing when I was on Avonex (said nooooo)

DD, since she has been DXed with MS, has refused all DMDs, because she saw what Avonex did to me. She told her Neuro...Nooooooooo, and is also on LDN. She no longer sees a Neuro and neither do I..

Whick dr. do you get your LDN from. Like I said my neuro went
balistic when I mentioned LDN to him.

Jappy
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Old 06-28-2009, 05:50 PM #3
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Whick dr. do you get your LDN from. Like I said my neuro went
balistic when I mentioned LDN to him.

Jappy
I have received my script from a Doc in PA, for the last 5 years. My Neuro wouldn't script it either.. DD gets hers from her PCP.

I think my PCP would script it but I just stay with Dr S, as many others do. He's an MD, but also an alternative Meds Doc.
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Old 07-02-2009, 05:31 AM #4
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I use the same doctor as Sally does, Jappy. He's an angel.....really.

My Neuro goes ballistic, too. Guess they're thinking of their bottom line when we ask for a med that doesn't generate any revenue for big pharma OR them!
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Old 07-02-2009, 11:01 AM #5
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Hiya Jappy!
Just stopped by to you and see if you posted on how the next shot went or if you talked to the doc...
Update when you can!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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