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Old 06-28-2009, 09:22 AM #21
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Quote:
Originally Posted by SallyC View Post
(((((((Jappy))))))) Feel better soon.
What she said.
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Old 06-28-2009, 09:40 AM #22
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Wow! Hope you are getting some relief!

I would have to dig out my old Rebif charts and see what they say, cause I don't remember anything like that.

You probably are much to sweet and delicate to go full force with the 44!

(Does that earn a pie when you feel better by the way?)
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Old 06-28-2009, 12:01 PM #23
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The alarm went off at 7am I had it set to get me up for church.

Well I never made it to church. Went back to sleep and woke up
3hrs. later.

I am feeling a little better now. The effects are wearing off. Now
tomorrow I am supposed to take another shot in the evening.

After talking (i hope) to the dr. I am going to decide if I should
continue with the shots.

My family is saying ((((noooo))) don't take them. They feel that my
life seems to be worse then when I just had the ms alone to worry about.

Well will see what happens tomorrow.

Jappy
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Old 06-28-2009, 12:35 PM #24
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My Family did the same thing when I was on Avonex (said nooooo)

DD, since she has been DXed with MS, has refused all DMDs, because she saw what Avonex did to me. She told her Neuro...Nooooooooo, and is also on LDN. She no longer sees a Neuro and neither do I..
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Old 06-28-2009, 04:42 PM #25
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Quote:
Originally Posted by SallyC View Post
My Family did the same thing when I was on Avonex (said nooooo)

DD, since she has been DXed with MS, has refused all DMDs, because she saw what Avonex did to me. She told her Neuro...Nooooooooo, and is also on LDN. She no longer sees a Neuro and neither do I..

Whick dr. do you get your LDN from. Like I said my neuro went
balistic when I mentioned LDN to him.

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Old 06-28-2009, 05:50 PM #26
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Quote:
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Whick dr. do you get your LDN from. Like I said my neuro went
balistic when I mentioned LDN to him.

Jappy
I have received my script from a Doc in PA, for the last 5 years. My Neuro wouldn't script it either.. DD gets hers from her PCP.

I think my PCP would script it but I just stay with Dr S, as many others do. He's an MD, but also an alternative Meds Doc.
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Old 07-02-2009, 05:31 AM #27
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I use the same doctor as Sally does, Jappy. He's an angel.....really.

My Neuro goes ballistic, too. Guess they're thinking of their bottom line when we ask for a med that doesn't generate any revenue for big pharma OR them!
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Old 07-02-2009, 11:01 AM #28
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Hiya Jappy!
Just stopped by to you and see if you posted on how the next shot went or if you talked to the doc...
Update when you can!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
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