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#11 | |||
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Elder
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Welcome PL...sorry for your dx, but glad you found this place...lots of info, hugs, laughs, and support.
I told a friend today that if I had to get a disease, I'm glad it's one that has meds to prevent advancement. And there's plenty of research ongoing to find a cure... Keep in touch, and ask for any info...there's lots of great people here! ![]()
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#12 | |||
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Magnate
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#13 | |||
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Member
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Welcome from me too.
I've always thought that MS isn't as bad as some other horrible diseases. At least whilst I'm not so bad anyway. I'd probably change my mind about that if I got much worse though. I hope you get the support you need from those around you and us of course. ![]() |
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#14 | |||
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Magnate
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Welcome to MS NeuroTalk, PL!
![]() You would not believe the number of nice, friendly, and caring people here. We're so glad you found us. I'm sorry for your diagnosis, but join the club. We have great discussions, and we have fun at The Stumble Inn and even games to play to take your mind off things. Jump in whever you want to post. If you ever just feel like talking, please feel free to PM me. ![]()
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Mair . |
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#15 | ||
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Junior Member
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My name is richard 24 and my mom is 47. I will try to make this as short as i can, my mom was diagnosed with MS approx. 11 years ago. She takes capaxon shots as well along with other meds and i think that helped her alot. But over the years i would ask my doctor about is the side affects to capoxon. Over time her muscles in legs have been disaperaring. I dont know if this is side-effect or body not beeint able to take it. I rememeber as a teen having to hold my mother foot because she was in so much pain and looked like her foot was going to brake. This was before she was diagnosed. Tired all the time and falling wothout warning. She also had bllod clots in her legs. But I hope and I will pray that they caught it soon enough that it doesnt progress to this stage. If you have any questions or concerns and i will do my best to answering them, when i provived for my single mother. I pray for you and your young family. Hope you get feeling better.
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#16 | |||
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Senior Member
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Welcome poetic license, and Nu-Nu09.
PL you have young kids, work and just dx with MS. I did too, at the time. I still went on to have more. The treatments available now, were not available then. I just kept on living my life as normal as possible. I hope you don't have any more attacks. ![]() Nu-Nu you were young when your Mom got her MS dx. So how did you feel at 11 years old when you found out? Also, how is your Mom doing now at 47 years old? Nice to meet both of you. ![]()
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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#17 | |||
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Grand Magnate
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Welcome to the forum, PL.
You sound like a Canadian, eh? ![]() Sorry to hear about the dx at such a young age ... just a few years younger than I was at the time. I have (almost) raised two daughters now though, almost on my own, so you will hopefully be pretty good for many years to come too. ![]() Are you considering Copaxone with your LDN? Have you found a neuro or doc to rx LDN for you? Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#18 | ||
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Junior Member
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Cherie, I'm actually not Canadian but close enough to the border! I have an appt with a supposedly LDN friendly neuro, my original, now ex-neuro is an unmentionable &^%$ and basically made it seem like he doesn't want me as a patient unless I got on a DMD, NOW. Tried to scare me by telling me of MS induced dementia cases. I need some time to think and he's not exactly helping. Not sure about the Copaxone at this time, i think it makes sense to give the LDN a chance, I'm not so sure yet. Then I wonder if I should just play it safe and do both. I'm currently following the CCSVI work closely and would like to investigate treating that in the future. |
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