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Old 06-26-2009, 09:50 PM #11
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Welcome PL...sorry for your dx, but glad you found this place...lots of info, hugs, laughs, and support.
I told a friend today that if I had to get a disease, I'm glad it's one that has meds to prevent advancement. And there's plenty of research ongoing to find a cure...
Keep in touch, and ask for any info...there's lots of great people here!
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Old 06-26-2009, 11:36 PM #12
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Quote:
Originally Posted by poetic license View Post
"Hey, if I'm gonna have a horrible disease, at least it's one that gets tons of research attention!"
Took the words right out of my mouth!! I literally said the exact same thing in response to my diagnosis.
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2004 to present - Trigeminal Neuralgia
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March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
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Old 06-27-2009, 04:29 AM #13
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Welcome from me too.

I've always thought that MS isn't as bad as some other horrible diseases. At least whilst I'm not so bad anyway. I'd probably change my mind about that if I got much worse though.

I hope you get the support you need from those around you and us of course.
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Old 06-27-2009, 11:48 AM #14
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Welcome to MS NeuroTalk, PL!

You would not believe the number of nice, friendly, and caring people here. We're so glad you found us.

I'm sorry for your diagnosis, but join the club. We have great discussions, and we have fun at The Stumble Inn and even games to play to take your mind off things.

Jump in whever you want to post.

If you ever just feel like talking, please feel free to PM me.
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Old 06-27-2009, 12:41 PM #15
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Heart my mother has ms...

My name is richard 24 and my mom is 47. I will try to make this as short as i can, my mom was diagnosed with MS approx. 11 years ago. She takes capaxon shots as well along with other meds and i think that helped her alot. But over the years i would ask my doctor about is the side affects to capoxon. Over time her muscles in legs have been disaperaring. I dont know if this is side-effect or body not beeint able to take it. I rememeber as a teen having to hold my mother foot because she was in so much pain and looked like her foot was going to brake. This was before she was diagnosed. Tired all the time and falling wothout warning. She also had bllod clots in her legs. But I hope and I will pray that they caught it soon enough that it doesnt progress to this stage. If you have any questions or concerns and i will do my best to answering them, when i provived for my single mother. I pray for you and your young family. Hope you get feeling better.
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Old 06-27-2009, 06:58 PM #16
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Welcome poetic license, and Nu-Nu09.

PL you have young kids, work and just dx with MS. I did too, at the time. I still went on to have more. The treatments available now, were not available then. I just kept on living my life as normal as possible. I hope you don't have any more attacks. That would be a blessing.

Nu-Nu you were young when your Mom got her MS dx. So how did you feel at 11 years old when you found out? Also, how is your Mom doing now at 47 years old?

Nice to meet both of you.
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Old 06-27-2009, 09:10 PM #17
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Welcome to the forum, PL.

You sound like a Canadian, eh?

Sorry to hear about the dx at such a young age ... just a few years younger than I was at the time. I have (almost) raised two daughters now though, almost on my own, so you will hopefully be pretty good for many years to come too.

Are you considering Copaxone with your LDN? Have you found a neuro or doc to rx LDN for you?

Cherie
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Old 06-28-2009, 08:37 PM #18
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Quote:
Originally Posted by SallyC View Post
Do you have a supportive Hubby/Family. That would help a lot. So sorry for your DX, but glad you found us. We will be here for you..

Welcome to the Family..
Yes, Sally, I do have a verrrrrry supportive husband, and family as well. That helps a lot. My sister fiddled with her shifts at work and came on a day's notice when my lumbar puncture got unexpectedly cancelled and I had to reschedule on a day my husband was off. I am so so grateful for their support. ... and also thankful for everyone's support here, because as much as family tries, one thing they can't do is understand what it's like to have MS, to live MS.

Cherie, I'm actually not Canadian but close enough to the border! I have an appt with a supposedly LDN friendly neuro, my original, now ex-neuro is an unmentionable &^%$ and basically made it seem like he doesn't want me as a patient unless I got on a DMD, NOW. Tried to scare me by telling me of MS induced dementia cases. I need some time to think and he's not exactly helping.

Not sure about the Copaxone at this time, i think it makes sense to give the LDN a chance, I'm not so sure yet. Then I wonder if I should just play it safe and do both. I'm currently following the CCSVI work closely and would like to investigate treating that in the future.
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