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More data on the Tysabri PML cases

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Old 06-27-2009, 01:54 PM #1
komokazi komokazi is offline
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Originally Posted by lady_express_44 View Post
I keep getting lost and ending up at a form called an Information Request, where you need to be a doctor or something ...

I don't think there's any problem with posting the link, is there Chris? If there is, could you just describe step by step how to get there, or send this to me by PM?

Thanks!

There are many people in the US who have been treated with steroids while on Tysabri, and of course the only reason they would is because they have break-through disease activity.

Anyway, any person/people treated with steroids (because of breakthrough activity), who then ended up with PML, would have been in the beginning stages of having it anyway. They wouldn't appear at their doctor, agree to steroids, THEN suddenly develop PML from that procedure ...

Not using steroids could potentially have made the PML less agressive, but using them didn't "cause" it.

Cherie
Of course there's a problem posting the link as it is marked do no distribute.

I thought you knew everything and here you are needing detailed directions that took me 5 minutes playing around to figure out. I've given you the hard part. It's definitely on Elan's website and not Biogen's and there is no requirement to type in a Medical License #.
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Old 06-27-2009, 02:39 PM #2
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Of course there's a problem posting the link as it is marked do no distribute.

I thought you knew everything and here you are needing detailed directions that took me 5 minutes playing around to figure out. I've given you the hard part. It's definitely on Elan's website and not Biogen's and there is no requirement to type in a Medical License #.
How would I know that it is marked "do not distribute" if I haven't found it?

Holy crap ... excuse me for asking! I am NOT computer savy, and never claimed to be.

Cherie
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Old 06-29-2009, 08:23 AM #3
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I thought you knew everything and here you are needing detailed directions that took me 5 minutes playing around to figure out. I've given you the hard part. It's definitely on Elan's website and not Biogen's and there is no requirement to type in a Medical License #.
I sure with his kind of comment didn't make it's way into the thread. Only serves to cause friction.

Harry
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Old 06-29-2009, 08:33 AM #4
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Harry
it seems the two members managed to get past that snide comment without any "friction" so let's not generate any now please

However, a repeated request that all please keep their posting respectful to one another without snide comments

thanks
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Old 06-29-2009, 11:29 AM #5
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Harry
it seems the two members managed to get past that snide comment without any "friction" so let's not generate any now please

However, a repeated request that all please keep their posting respectful to one another without snide comments

thanks
Cherie
the correct protocol if someone makes a comment to you that you feel is not ok, is to report it and I or one of the mods will asap be here to edit if it violates the guidelines by being a flame, which that one was.

but as it wasnt reported, and you instead had already replied to it, and then you and Chris seem to have moved past it, perhaps, as I clearly posted above, it is time to therefore move on,rather than now start rehashing it, and please report in future so we can be alerted

thanks
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Old 06-30-2009, 03:18 PM #6
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The 10th case is now included in the report. Looks like another case caught early.
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Old 06-29-2009, 11:14 AM #7
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I sure with his kind of comment didn't make it's way into the thread. Only serves to cause friction.

Harry
Glad to know I'm not the only one that notices these digs, Harry, and don't worry ... it's only friction for ME. I've learned to suck them up, since it serves no purpose what-so-ever to react like a normal person would to them.

Cherie
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