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#11 | |||
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Magnate
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Thanks Ali, I hope so as well!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#12 | |||
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Senior Member
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Hi Laura,
I'm glad that you found a pain medication that works for you. ![]() It must feel good to finally get rid of that head and neuralgia pain. I hope it keeps working for you. Do they increase the dosage for you, or do they let you take it however you want? Are you allowed to drive on this medication? Sorry for all the questions. I know it's for chemo patients, I just wanted to know how it effects people who use it off-label. Curious people want to know (me). ![]()
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | dmplaura (07-08-2009) |
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#13 | |||
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Magnate
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Hey Lady!
From what I understand I can take this indefinitely. They worked me up gradually to my current dose (which I'm finding a bit tougher to adjust to). My #1 complaint about the drug is it makes me so drowsy. Other than that, I don't experience side effects that I can really notice. So if you have problems with fatigue, I'd imagine the adjustment period would be tougher. In my case, I take it daily. I'm not sure if he uses different doses for other people. It's still taking care of the pain, so that's what matters most right now! I hope it keeps working too!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (07-08-2009) |
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