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Old 06-30-2009, 11:20 PM #1
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Default My Cesamet update :)
I've been taking Cesamet for 4 weeks now. I begin week 5 tomorrow, which is my top level dose that I had to work up to.

I'm surprised with this medication for a number of reasons. One is that the body adjusts to it quickly, unlike my experience with other 'narcotics' (which left me feeling stupid no matter what). After the initial 2 weeks, I wasn't getting the euphoric feeling increasing the dose. After 2 days at the next level of medication, it evens out and besides feeling a bit dopey/drowsy, otherwise very tolerable side effects.

Oh that's the thing. Other than the bit dopey feeling, no side effects. Nadda, ziltch. And I can take it with other medications with apparently very little interaction (there are some, but I also take Clonazepam and I'm actually taking less Clonazepam since I started taking Cesamet).

What's important? It broke through the ball of pain,burning etc within 2 weeks. I noticed this week I haven't taken more than 2 Aleve (for my jaw pain) in the past 2 weeks.

Yup, it kicked the snot out of the neuralgia pain I was having. I occasionally get a bit of a headache, but they're minor and short lived, compared to the agony I had been in, this is heaven.

The only downside I'm finding is the cost. $350 for 93 pills (31 days worth). I'm glad I have insurance. It's worth the cost for me because I am living *almost* pain free and it's been a long time since.

Definitely 2 thumbs up for me in regards to this medication
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2004 to present - Trigeminal Neuralgia
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March 2008 - Multiple Sclerosis DX
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10/2011 - Relapse - Optic Neuritis developed
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Old 07-01-2009, 12:38 AM #2
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WooHoo! That's great news!
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Old 07-01-2009, 02:01 AM #3
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Great news,Laura! I'm so glad to hear ( read) it.
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Old 07-01-2009, 08:24 AM #4
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Glad to hear you finally found something to ease the pain!
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Old 07-01-2009, 10:45 AM #5
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Laura, that is wonderful news! I'm so happy for you that you've found something to relieve your pain.
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Old 07-01-2009, 11:38 AM #6
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So is this readily available for anyone who requests a rx, or is it still considered experimental?

Do you know what all is in it?

Glad you are feeling better, Laura!

Cherie
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Old 07-01-2009, 09:46 PM #7
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Quote:
Originally Posted by lady_express_44 View Post
So is this readily available for anyone who requests a rx, or is it still considered experimental?

Do you know what all is in it?

Glad you are feeling better, Laura!

Cherie
Search for Cesamet/Nabilone. It's been around for quite a while, but only being produced I believe in the US since 2006 (?). I didn't read too too much about it.

I know my GP didn't recommend, rx or suggest it. It was the second thing after Sativex that my pain doctor recommended.

If it's readily available, doubtful. It does sound a LOT like any other narcotic as far as doctors rx'ing it. Maybe it's just discouraged from being rx'ed outside of the listed uses (nausea from chemo for example).

It's basically synthetic THC.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 07-01-2009, 11:11 PM #8
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Laura - thanks for letting us know about this med. Wonder if it is good for headaches? I hate taking percocet or vicodin.

Cherie - I just checked my blue shield benefits - and Cesamet is a covered drug. Since it is only brand - it is at the highest copay level, but it is covered.

~Keri
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Old 07-01-2009, 11:34 PM #9
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Quote:
Originally Posted by RedPenguins View Post
Laura - thanks for letting us know about this med. Wonder if it is good for headaches? I hate taking percocet or vicodin.

Cherie - I just checked my blue shield benefits - and Cesamet is a covered drug. Since it is only brand - it is at the highest copay level, but it is covered.

~Keri
I actually began taking it for my 'headaches', which were ultimately neuralgia. Tylenol/Advil/Aleve didn't cut through the ball of pain I had in 1 location daily for months. This stuff did.

A side effect can be headache from this med, but I've had an overall reduction in headache.

PS Thanks for the info about the insurance
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 07-02-2009, 01:15 PM #10
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Yay!!! That is GREAT news Laura, i'm SO glad to hear that your pain has decreased so much!!

I hope the med continues working for you for a very long time!!
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