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Old 06-30-2009, 11:20 PM #1
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default My Cesamet update :)

I've been taking Cesamet for 4 weeks now. I begin week 5 tomorrow, which is my top level dose that I had to work up to.

I'm surprised with this medication for a number of reasons. One is that the body adjusts to it quickly, unlike my experience with other 'narcotics' (which left me feeling stupid no matter what). After the initial 2 weeks, I wasn't getting the euphoric feeling increasing the dose. After 2 days at the next level of medication, it evens out and besides feeling a bit dopey/drowsy, otherwise very tolerable side effects.

Oh that's the thing. Other than the bit dopey feeling, no side effects. Nadda, ziltch. And I can take it with other medications with apparently very little interaction (there are some, but I also take Clonazepam and I'm actually taking less Clonazepam since I started taking Cesamet).

What's important? It broke through the ball of pain,burning etc within 2 weeks. I noticed this week I haven't taken more than 2 Aleve (for my jaw pain) in the past 2 weeks.

Yup, it kicked the snot out of the neuralgia pain I was having. I occasionally get a bit of a headache, but they're minor and short lived, compared to the agony I had been in, this is heaven.

The only downside I'm finding is the cost. $350 for 93 pills (31 days worth). I'm glad I have insurance. It's worth the cost for me because I am living *almost* pain free and it's been a long time since.

Definitely 2 thumbs up for me in regards to this medication
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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