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Old 07-08-2009, 10:35 PM #6
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dmplaura dmplaura is offline
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by barb02 View Post
Mine is not necessarily heat related. It just seems to get worse throughout the day. Although if I get really hot or stressed out, it does seem worse.
I hear you. I have this as well, and I can relate to what you folks are saying.

I can best describe mine as it feeling like my head's in one of those hot air dryers that fits over your head. That kind of overall but in some places hotter sensation. Or a crawling heat feeling. It's unnerving as heck!!!

Mine also gets worse with heat, but ONLY with weather heat. When the humidity goes up, I get the head heat full time.

Now that it's not humid and cool here this week, mine's gone away. Soon as it warms up though I expect it to return a bit.

I didn't find any of the previous drugs I tried really helped it, and I haven't been on Cesamet long enough to find out if it's going to help the heat sensation. I do know it helped the more acute area of burning and pain so far.

I gave Neurontin, Amitriptyline, Tegretol and a couple others a shot before.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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