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Old 12-19-2006, 10:21 PM #3
bafriend bafriend is offline
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Join Date: Sep 2006
Location: Maryland
Posts: 36
15 yr Member
bafriend bafriend is offline
Junior Member
 
Join Date: Sep 2006
Location: Maryland
Posts: 36
15 yr Member
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Would you believe the docs are trying to get my daughter to agree to treat her 3 year old son with Rituxan. He has ITP, idiopathic thrombocytopenia purpura. He's considered chronic and has not responded to steroids. She has consulted with several of the best pediatric hematologists and they all suggest Rituxan.

So far Kendra hasn't been willing to use the drug as it's not approved for ITP and the positive results with the drug are only about 30%.

She wants to use the wait and watch approach. Treat only when his platelets are really low. Her Dr wants him on continuous steroids. What a problem. Dr has threated her with protective services.

Worry, Worry, Worry. Betty
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