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Old 07-16-2009, 11:43 AM #1
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I'm still in Diplopia Hell this morning.

I called the eye doctor and asked the tech about how long it takes after steroids. The ophthalmologist wasnt there, and the optician didnt know, so I have to ask the neuro.

She did check my chart to see where the damage was from according to my eye doctor since I wasnt quite sure what he'd said. It was definately the 6th cranial nerve that was screwing around.

Maybe it just takes awhile for the solumedrol to work it's way to that nerve. And maybe it's a more complicated nerve than the ones that affect sensation on my skin? So maybe that's why it takes a little longer?

I made an appointment to see the eye doctor before I go to my neuro at the end of the month, so that I can find out if there's any improvement or anything else to do if the Diplopia Hell doesnt end by then.

Asked about Fresnel Prisms (the prisms they put on your glasses) and she said she'd look and see if they have them, just in case when I go to the appointment on the 27th they might give me one. (eye doctor is out of town till then)

She said the prisms are attached to your glasses lens, and it's probably not something I could take off the lens at will. I hope if I have to use one, that it'll work. The double vision seems to change daily, so I'm not sure it'll be worth it to get a prism.

In other steroid improvements, I had some burning in my left foot last night around the toes, woke up this morning, the burn was gone, and my toes are happy campers. I can feel my little toe! And that arthritis pain in my big toe. GONE!! (toe always feels like it's broken...always hurts)

No pain in that toe, another reason the steroids were totally worth it. Even if my eye's are still fubar, I'm liking the improvements in other MS deparments.

I'm tired and my back is a bit sore (I slept weird last night because I had some heartburn from the steroids) but I feel pretty darn good.

I just cant wait for Diplopia Hell to come to an end.
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Last edited by Erin524; 07-16-2009 at 12:06 PM. Reason: edited to fix a misspelling
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Old 07-16-2009, 12:01 PM #2
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Good going, Erin..
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Old 07-16-2009, 12:52 PM #3
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Way to go, Erin! Sounds like the steroids are slowly doing their job.
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Old 07-16-2009, 01:52 PM #4
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Quote:
Originally Posted by azoyizes View Post
Way to go, Erin! Sounds like the steroids are slowly doing their job.
I just want it to work on the eyes. FASTER!!!! Like RIGHT NOW!!! Diplopia Hell really sucks.

At least now I've had my first experience with IVSM, and it was a lot nicer than my experience with oral pred. I'd do IVSM again before I'd do oral pred again. I just hope the IVSM doesnt trigger any funky infections like the prednisone did when I had it a couple of years ago.

I've been wearing the patch so much, that my right eye (the "good one") is feeling weird, so I'm trying to experiment with how much I can do around the house without having to wear the patch and not be walking into things.

I'll be so happy to be released from Diplopia Hell. I cant wait till then. It's like being in prison.

I'm claustrophobic, and I hate having things in front of my face. Having to wear an eye patch is triggering the claustrophobia a little bit. It's really quite irritating.
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