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Old 07-12-2009, 11:21 AM #1
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FinLady FinLady is offline
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Join Date: Jan 2008
Location: Raised NY, Live OH
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15 yr Member
FinLady FinLady is offline
Grand Magnate
FinLady's Avatar
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
Default At the two year mark and... (a reflection and a vent)

some things are easier, some things are not.

The first year was harder as far as trying to wrap my head around this disease. Knowledge is power, and managed to grab my paws on everything to help me understand what was going on. Thankfully found a few forums, including NT, and got a lot of support and help when I was scared (side note: you guys are awesome!!!! )

Went out on a limb and decided to showcase my art. Been hoofing it to galleries and festivals, and trying to get my name out there People are funny creatures. I get less hemming and hawing when I say I'm an artist versus when I say I'm not working.

Hitting my second year feeling a little worse for wear and heading for the MRI on Tuesday - the second in the year. There was a "maybe" new leison on my T spine on the last one, but I moved too much for them to get a clear shot. Hopefully valium will help them get a pretty pic.

Recently getting a little frustrated with the rollar coaster of symptoms - never the same two days in a row! It makes it hard to plow through sometimes since it's on the unpredictable side, but I keep trying. The new ones have been even more fun, and hoping I can find ways to adjust around them like I have for my more usual suspects.

Want to scream at the docs, especially the next one who says my symptoms are "a typical". I feel like saying - "Well, Duh! been that way since the start", but generally too nice to say something like that. Though my neuro and I almost got into a major arguement at the last exam.

So that, believe it or not, is the short version Still taking it one day at a time and trying to keep on keeping on.

Thanks for listening.
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